Upcoming hysterectomy

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Hi

im new to this group, it’s taken me a few weeks after my diagnosis to be brave enough to actually look at these types of forums never mind write on them. 

I am booked in for my hysterectomy bilateral salpingo-oophorectomy on Tuesday and I’m getting extreme anxious about it. It’s not the operation that’s concerning me it’s the part before, the attending hospital in the morning, waiting for my slot and then being put to sleep. 

im also interested in others experience of being diagnosed and the weeks afterwards. I seem to be living in a bit of denial about having cancer as I have no symptoms and feel generally well. I’ve been diagnosed with grade 1 stage 1a via MRI. I’m aware the confirmed staging will happen a few weeks after the op but at the moment I don’t know if I’m just being extremely positive or blasé about it. Has anyone else felt like this? 

  • Hello welcome to the group and we all understand how hard it is xx and just to say I have and feeling just the way you do, I too was so scared of the op and it all happens so quickly diagnosed and in shock then pre op then the op date all happened for me from 1/2/24 diagnosed to 29/2/24 the op !

    I thought I was going for op on the morning so arrived at 7 then they said you are going at 12 so sat in a little room with en suite Slight smile waiting then they said you are going to be later so I was allowed two little cups of water and went at 3.30pm but you know what the actual day of the op was so much better then the build up, I was also scared of the anesthetic and then I looked at my bag it had a sticker ward 10 and I thought you know what they do this day in day our it’s all normal for them so I felt happier I was going to be on ward 10 after, they were very jovial in the pre theatre part laughing and joking and asked me what do I like Gin I said nooo I don’t really drink anyway so he said well if you had to I said ok I porn star Martini tk which he said well you having some now and I felt all sleepy and he said now you are having bucket loads ( I don’t know whether that was for me to hear ha but I heard it ) next thing I am in recovery being looked after, I came home the next day and recovering well first few days very slow with wind pains shoulder tummy but gradually walking about and watching One day on Netflix stroking our puppy all helped xx they sounded positive after my op I too have felt spaced out at the beginning and in denial as felt fine but trying my best to work through it xx 

  • Hi Shirleydana

    Thank you so much for your reply. It was lovely to read your experience and know that others feel/felt the same way. 

    I do think the quickness of it all makes it very scary and builds on your anxiety levels 

    I had

    Biopsy on 07/02/24

    Results 21/02/24

    MRI 29/02/24

    Op due 26/03/24

    i have to remember like you said they do this everyday. I’m sure once I’m in the hospital I will feel much better Fingers crossed tone2

  • It’s not long to wait the hospital sent me some complimentary therapy as I was so anxious, here is a link that helped me so much esp on the morning and day before the op,

    https://youtu.be/SNqYG95j_UQ?si=gbS8mn0EW9pP2xlU

    they also told me leading up to the op to eat eat eat they said anything you fancy but also if you can eat nutritious things so I was eating extra broccoli etc 

    yes they told me in a nice way it’s like a conveyor belt for them so I laughed and felt fine xx honestly this time is the worst bit soon you will be at home on your own comfy bed, oh thru did say buy some big  knickers which have been great ha plus I ordered some lounge sets so comfy after xx. 

  • Hi Malaseb, I had my op in January 2022. I’d already had my hysteroscopy under GA at the same day surgery unit so it wasn’t quite as scary for me as it could have been as I was already familiar with the ward and the protocol.  Set alarm for 5.15am, taxi came at 6.30 and I got there 20 mins early. There was about a dozen of us queuing and we went through the day surgery ward door at 7.30 and allocated our temporary beds and cubicle. A very nice health care assistant spent about an hour with me going through the forms, taking my blood pressure and temp, and measuring/fitting my Norah Batty stockings. The anaesthetist stopped by to have a chat, listen to my chest and do more forms, she was also pleasant. My lovely consultant came to say hello and chat things through, and also made me laugh, leaving me feeling confident and reassured. What struck me most was how routine this all was for all of them and I found that helped. In between the frequent staff visits to my cubicle, I logged into the free hospital WiFi and played my word game apps and also posted on this group with a pic of my legs in my Norah Batty stockings! The time went very quickly with all the visits and the chats, and walking to the loo and back. I was actually last up - a health care assistant came to collect my suitcase and pillow and I walked down to theatre with the anaesthetist. I got onto the table, was made comfortable, I was checked over again, the cannula was put in, I was given a small mask and was out within a minute. Next thing I knew I was awake in the recovery room with a nurse by my side offering me sips of water. She was assigned to just me and stayed with me till I was taken up to the ward. Feel free to ask any questions! 

  • Hi

    Thank you for responding. It sounds so relaxed and from other comments Ive read that seems to be a common theme. 

    its the fear of the unknown, I’ve not had an operation for 36 years and that was an emergency c section so didn’t have time to think about it. 

    I really don’t know why I’m so worried about being put to sleep, ideally I just want to be thinking about removing the cancer and the positivity of that. 

  • I too had an emergency c section - mine was in 1989 - and I’d say having had that op really set me up well for having an hysterectomy and recovering from it. Did you have a lateral or vertical incision?

  • Mine was 1988. I had a lateral incision very low down right on my pubic bone as my son was right down the birth canal before he twisted his head and got stuck See no evil

  • Did you have it under general anaesthetic?

  • Hi 

    yes I did, there wasn’t much time for anything else. I think as it happened so fast I had no time to think of anything else whereas now I have time to reflect on it. 

  • Same here. My baby was in distress so before I knew it I was whisked off to theatre. Have you packed yet for Tuesday? I found that it helped me greatly to plan what I was taking with me, especially snacks, and I even bought a few new things,