Hello!
I was diagnosed with endometrial cancer last Wednesday and am awaiting surgery. I was coping pretty well until today it seems (the diagnosis was not unexpected but still knocked me sideways despite that)! I work in the NHS as a Clinical Support Worker (a discharge therapy team) but I am not medically trained.
I went to work this morning in my local hospital but when I was called upon to support a patient's sister (a complex case scenario) all my fears and anxieties for my own health came crowding in and I became overwhelmed and had to come home. I really thought work would be a good distraction but that appeared not to be the case. My team leader and several trusted colleagues are aware of my diagnosis.
To give my diagnosis some context, I have felt unwell since last autumn ( I just knew something wasn't right) and have had to cope with increased musculoskeletal pain including chronic neck/back pain from osteoarthritis (?) and hip pain from tendinopathy. I seem to have gone down a rabbit hole in thinking the sudden increase in musculoskeletal pain (since February of this year) is somehow connected to the cancer diagnosis and is a sign it has spread... I find myself really not coping today. Any support gratefully received.
Miranda got back to me quickly and her network do Womb Blessing ceremonies that can be coordinated remotely and she has been considering doing more meditation work for women who have or are going through a hysterectomy. While many women deal with a sense of loss with menopause transitioning to a new phase of womanhood, this too is an important area where loss can be experienced not only physically and emotionally but spiritually.
That is a lovely reply! I do think rites of passage are not always given great importance in our Western culture, generally speaking that is. Also, working in healthcare as I do, the body is far too frequently seen as less than holistically, hence specialisms. A wonderful occupational therapist I work with, has today suggested that my sudden flare of arthritic symptoms in February could be related to the uterine cancer. On doing some research, I find that apparently, 'autoimmune and rheumatic features are not rare among patients with malignancies'. I have now also been referred to rheumatology. The opportunities to craft something meaningful are coming thick and fast it seems. I'll give it a go!
Thank you so much for this, it is most reassuring. I find myself valuing each and every response to my original post. That women like yourself have taken the time to reassure me with their own testimonies is wonderful! I would be interested to hear the outcome of your meeting with the oncologist on Monday regarding being offered radiotherapy despite the cancer having not spread. I was also told this might be a possibility for myself. I understand that some women reject radiotherapy?? Back pain AND cancer...surely not the one! Honestly - I think we all need a break!!
My cancer had not spread and I had adjuvant chemotherapy and adjuvant radiotherapy. In my case it was because of the grade of the cancer not the stage. I was stage 1b. They look at lots of different factors but they will explain them to both of you so you can make the decision that is best for you.
Oh I am pleased that these discussions are helping with your anxiety. Totally agree about Western culture though there are those working to help us reconnect to those traditions.
Miranda has offered her website for information etc.
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