My Wife and possible womb cancer

  • 20 replies
  • 89 subscribers
  • 2236 views

Hi. I am a very worried husband.

first a bit of history.  In 2015 my wife then 57, was diagnosed with breast cancer caught very early, small lump removed small amount of radiotherapy, followed by tamoxifen since then.

fast forward to November 2022, we had been away and on our return journey she had a massive vaginal bleed, soaked her clothes and needed time on the loo til it subsided,  not stopped.  Made same day appointment to see GP who fast tracked hospital for an ultrasound 3 days later, outcome we were informed at follow up was 2 polyps, I specifically asked about thickness of womb wall to be told normal, at this follow up she had a hysteroscopy  in which a biopsy was taken.  2 weeks later just before Xmas we had a letter says if it wasn’t cancer but ‘complex endometrial hyperplasia’ and we had further appointment on 29th December. At this appointment we were told a revised diagnosis of ‘Atypia complex endometrial hyperplasia’ which showed pre cancer cells.

as a result she is having a hysterectomy this Friday.  

She  is continuing to lose blood which hasn’t stopped since November,  I am very concerned that when they can see the whole womb it might indeed be full cancer not pre cancer as obviously a biopsy was just a very small tissue sample.

normally I understand this type of cancer does show itself early by blood loss apart from this recent episode I seem to recall her having a small ‘period’ in 2017,  surely if it was related to this pre cancer she wouldn’t  bleed and then stop for 6 years.

having said that clearly it’s a slow growing cancer and maybe it’s been growing since 2017. 

I have an additional concern in light of that statement  in as much as she has developed a cough alongside all this so over 8 weeks, and my worry is that if it is cancer has it spread to her lungs which seems to be a common site for it to spread to.

apologies this is such long post but I am beside myself with worry.

  • Hi  . I underwent hysterectomy in May for Atypical Complex Endometrial Hyperplasia, this was found due to heavy bleeding caused by a polyp, so very similar circumstances. My biopsy showed I did have cancer Stage 1A. This was after at least 3 years of a polyp being present. Obviously, everyone's circumstances are different and you can never second guess, but after extensive conversations with my consultant it is very unlikely a womb cancer would progress to lung if all they have found is pre-cancer cells in the womb - you'd be looking at Stage 4 for this.

    The hysterectomy will reveal everything and I really wouldn't second guess - sounds like she's had a really bad run but she's a lucky lady to have someone helping her on this journey with such a good heart. 

    There is an excellent guide on Macmillan that explains the stages and I thoroughly recommend reading through this as it helps to understand a lot more about how this cancer evolves:

    https://www.macmillan.org.uk/cancer-information-and-support/womb-cancer/womb-cancer-stages

    All the best for this Friday and I hope the operation goes well. 

  • Hi, thank you for reply positive reply. It us very much appreciated.

    Al

  • Hi again ajc, well done for doing your new post here! And bless you for caring so much and wanting to support your wife in this. How is she doing? How is she feeling about the op? I had my hysterectomy almost a year ago, and at the time wrote a day to day diary from the op day onwards, I could post a link here for you if you like? 

    It’s totally understandable to feel anxious and also okay to be anxious, but I’d encourage you to try and not run ahead, but to try and focus on dealing with what each day brings rather than the what ifs. Easier said than done but it’s a good thing to aim for. Oh and stop using Dr. Google! Dr, Google should be struck off as he/she just ends up scaring people unnecessarily. Your wife may have been given contact details for her CNS, for her to get support. And Macmillan themselves offer excellent support 8am-8pm 7 days a week - go here and scroll down https://www.macmillan.org.uk/

    You should then find something that looks like this 

    They’d be only too happy to offer support to you. And so are we on this group. 

  • Unfortunately  I didn't get a CNS assigned for pre-cancer until biopsy, so this might be the case here x

  • Aha Cakenport of course - I forgot about that. I’m sure Macmillan would be happy to offer her support 

  • What is CNS please ? 

  • CNS means Cancer Nurse Specialist - probably a Macmillan funded nurse at your hospital. It's someone you have a direct phone and email for and they are much more approachable than the consultant and can do a lot of follow up work for you. Unfortunately, I don't think pre-cancer gets this as standard. I only had mine assigned after it was confirmed I had a staged cancer after biopsy. This meant I lost out on a lot of support beforehand (both mentally and financially) but thankfully I had this group.

  • Hi,

    I am 7 weeks post hysterectomy surgery due to Aytipical Complex endometrial hyperplasia. I also had breast cancer and a mastectomy in Nov 2021, so have an idea what you and your wife are going through. I was on tamoxifen , which my oncologist changed to Anasterozole after I had bleeding. I’m pleased to say that after my hysterectomy the histology report showed nothing worse than the pre cancer cells. I too had felt incredibly stressed before my hysterectomy as I think I assumed it would be cancer (after my previous breast cancer) My oncologist was incredibly helpful though prior to my surgery and reassured me that if it was cancer it was  primary cancer. He also pointed out that the fact I had the bleed was a positive thing - otherwise I may not have known what was happening in my womb.. I really hope that all goes well for your wife. The waiting is by far the hardest part !
    Take care. 

  • Thanks for your support.  Just checking, When did you have the breast cancer? Your message suggests Nov 2022, I am shocked you had both the pre cancer cells and Breast cancer at same time what incredibly bad luck.

    • stay well , and thanks for your good wishes
  • I’m so sorry , I meant Nov 2021. I thought I’d edited! Very best wishes to you and your wife.