Carcinosarcoma

  • 19 replies
  • 95 subscribers
  • 3753 views

Hi Everyone,

I’ve been diagnosed with stage IIIc1 carcinosarcoma.

The words rare and aggressive seem like a common theme here. I’m about to start chemotherapy in 2 weeks followed by radiotherapy then brachytherapy. It’s been a lot to take in. Anyone out there with the same and in remission? 
Trying so hard to stay positive.. or rather not think about it.

  • I'm sure they will find a way lovely. The operation was not anything like as bad as I thought it was going to be. I'm also very overweight ( stress diet is working though at moment!Slight smile) and it was fine. Feel free to PM me anytime xxxxx

  • Hopefully they will, the doctor I saw last week said that they either won’t do it, just do the hysterectomy tubes and ovaries or they will do all that plus take the lymph nodes out so fingers crossed for at least the hysterectomy.  The stress diet is working for me but sadly still 26 stone so I’m not feeling very confident. X 

  • I've got everything crossed for you xxx

  • You are all in my thoughts and sending positive vibes (and hugs)

  • I'm sorry if I have been negative about radiotherapy and chemotherapy and my sarcoma. I can only talk about what my sarcoma consultant told me. I can only think that all the consultants treat their patients differently. I wish my consultant would offer adjuvant treatment for my lymphovascular space invasion as it's really worrying me that there's cancer cells floating round. I'm having my CT scans tomorrow and seeing the consultant in two weeks. My scientist daughter is coming with me to ask the questions I didn't ask.

  • Hey Deborino, you’ve got nothing to apologise for, all of our cases are judged on their own merits, we are all different. You can only say what you’ve been told about your own situation. We all have to trust our medics, and hope they know what they are doing! Doesn’t stop us worrying ourselves sick though does it!  Perhaps you can ask why they are not giving you the adjuvant treatment rapt your next appointment, it maybe cos they want to see all your scans before deciding what to do next. Take care,

    Viv x

  • Hi You've only stated what you've been told about your own situation and what you've been told so nothing to apologise for.

    Hope the CT scan goes well and the forthcoming consultation goes well, good to have your daughter with you. They always say any questions and we look blankly back recalling all we wanted to say back at the car park!

    Big hugs, Barb x


    Community Champion Badge

    Womb cancer forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    "Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett

  • Hi Gal68

    I was diagnosed with Carcinosarcoma on 1st July so not out the other side yet but I’ve had my hysterectomy, lymph node removal etc. I am Stage 1b, Grade 3 so my plan is for chemo x6 then brachytherapy x3. I go for my third chemo on Wednesday next week so nearly halfway through.

    I won’t lie it has been tough at times and I have developed Peripheral Neuropathy as a side effect of the chemo but I will do this.

    Just remember you are stronger than you think and you will get through this.

    Take cate

    Kate xx

  • Hi Kate,

    I start my chemotherapy on Friday. I also was diagnosed in July. I can’t quite wrap my head around the grade 3 and I’m terrified of the stage 3 which I only found out last week. I am just going to try and get through one step at a time. Please let me know how you are getting on.

    Take care too.

    G.x