I'm sorry to keep posting but I've hardly been out of bed for 2 days now, my house is a mess, it's taking all of my effort to get into the shower and I've hardly eaten anything in days. I'm in contact with my GP and other mental health professionals etc. but I'm getting worse. I feel like I just want to stay in bed where I feel is the safest place to be.
My MDT are meeting tomorrow at the specialist hospital (Wednesday) to consider the next steps, whether I can have a hysterectomy or alternative treatment due to my severe endometriosis, and now a hydrosalpinx has been thrown into the mix. I really don't know where to turn to or how to motivate myself. My CNS is still assuring me that I'm 'not going to die' but given that she doesn't even know whether I'm having surgery or not, I'm not sure how she can be so sure of this.
I've never felt so alone, I just can't function. Has anyone else found themselves in this state and how do you get out of it? It's been nearly 5 weeks now and I've still not started treatment.
Hi Lizbot
It's fine to post as often as you need. I would rather someone post on here than feel they were having to handle things alone.
I am sorry that you are still finding things really tough.
I hope that the MDT meeting tomorrow brings some clarification about what will be happening and that they contact you before Christmas so you can relax a little more.
One thing at a time. I understand that sometimes staying in bed feels like the best option. What about a quick shower and then rest up on the sofa and watch something. A cup of tea and a bit of toast. Just thinking that you may feel worse if you stay in bed- I know I probably would. I know when I had my chemo some days I found it really hard to get up and dressed but just having a quick shower, fresh clothes and to come downstairs did help. You need to try and eat a bit- it will help with your treatment (whatever it is) .
5 weeks wait to start treatment is not unusual. I was lucky in that my surgery was 4 weeks from my first symptom however I know there are many ladies on here who have waited much longer.
I hope that you get some answers and a plan ahead from the MDT tomorrow.
Jane
