Hello,
it is four years now since I had full hysterectomy followed by brachytherapy. I was fine until March last year when I was admitted to hospital with abdominal pains which were possibly due to a small kidney stone but when I had an xray and other tests I was told that the cancer has spread to other parts. I was offered chemo - Paclitaxel and Carboplatin - I have posted a message a few months ago as I had an adverse reaction to Paclitaxel - so I was continuing with Carboplatin which I have tolerated well.
Couple of weeks ago I had another scan and seen my consultant today - the news are not good - cancer has spread further and increased in size in my lungs and liver. I was given a choice of having immunotherapy involving Pembrolizumab (Keytruda) and Lenvatinib or do nothing and palliative care.
I was given some literature about this immunotherapy treatment and had a brief look on the internet. Some side effects can be really horrible. I just wonder if anybody has any experience of this process?
I’m so sorry you’re feeling low on your birthday, it’s hard to keep positive when you’re feeling rough. Maybe treat yourself to some of that wine and curl up to watch a film. I’ve not spoken to anyone but u believe both MacMillan and Maggies are very good and give lots of support. Reach out if you need to, I’ll keep an eye on the posts today if you need us, Mary x
If it is your only side affect, my advice would be to see your GP to manage your BP because the doc explained this week to me that if the BP was the only issue he’d “deal with that”
I have been on 10mg Ramipril for a long time over 15 years. I think he might have limited options in my case.
Oh and he also called the increased BP a trend, which I understood to mean would continue on an upward trajectory. If that is so then, managing BP is a must…
Not wishing to scare you at all rather imparting information - I learned that most womb cancer patients die of a heart attack. I asked the doc one time was there any factor of womb cancer that contributed to those deaths and he said no. The common causation was obesity. It is much more common for men to have heart issues than women.
I tried kifir but not ayran. I made my own yogurt, which was sooo easy and a great success. Highly recommend that…the “GAPS diet” folks suggest increasing the fermenting time to 24 hours!
Am I allowed a little tear reading the kindness in your message??!! Thank you.
I’m grand - have just been handed fresh croissants and a cappuccino with a book of poems to be read out loud daily!! I deffo fancy the movie bit too. Have rejected the idea of our favourite restaurant but DH is a descent cook so we’ll have a nice meal. For sure, I store up this sacrifice for another time!!
Thanks for the info, don't know if a death from a heart attack is better then prolonged suffering on palliative care! I will monitor the BP for the next few days and see the doctor or speak to the nurses when I have my next infusion next week. At the moment I am loosing weight - just over 57 kgs which is probably the correct weight for my height 162 cm. I was hoping to avoid the extra medication....
If you wish to try ayran the best places to find it is middle eastern shops.
Enjoy rest of the day and I am sure the home cooked dinner will be better then in a restaurant.
The “Jane” in my post about aspirin is Jane McLelland - have read her book. She has hero status for “curing” stage 4. That’s incredibly amazing isn’t it however to mirror her success there is a list of a zillion things to change…all at once….Though seemingly impossible Jane is worth checking out on YouTube & PodCasts as she has a lot of good advice to impart.
Anyway I only mention it as the aspirin would be taken daily 75mg - note this is a blood thinner if asked by medics - there was a News segment on BBC circa one month ago about this “tool” for cancer patients saying promising results with research ongoing - possibly searchable on the BBC website
Am losing weight too hence treating food as medicine ATM.
Now about “prolonged suffering on palliative care” : we have to stop torturing ourselves with this kind of thinking. It kills our spirit now for something that might not even happen. Have no clue how to regulate the “fear” of what’s to come but I do know it harms us now because a positive mindset is as much a tool in our armoury as all the rest of it. My solace is that whatever comes the medics have ways to allow us to be comfortable.
Hands-up, I profess to a trust in God my saviour.
ok, thanks I will have a look later. I remember reading something about beneficial effects of aspirin but I will look into it again. I have also read that taking the turkey tail mushroom supplement can cure cancer but haven' tried it as yet, will leave it as the last resort! I am sure that in nature there cures which haven't been discovered as yet. The Paclitaxel which unfortunately I am allergic to is an extract of the yew tree. The one administered is a chemical version of it as it is to expensive to extract from the natural sources. There is so much information on the internet, just don't know what to believe!
To be honest my mind is quite blank about the future and how it will end as it inevitably will one day for all of us, just the matter of when and how. I have mentioned prolonged suffering as I have seen it happening to few of my friends in the past. But as they say where is a life there is a hope and it is easier to be positive if there is no physical pain involved I think. Anyway, going food shopping now, will be in touch later
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