So I’ve been going through menopause for 2 years now (no bleeding) and then a couple of weeks ago I bled for 11 days, stopped for 2 days then bled again for a further 2 days. I work in cancer support so I’m aware that it can be a number of things. I had a telephone consultation with my GP yesterday morning and she said she was referring me on a ‘2 week pathway’ to gynaecology at local hospital and what my appointment will entail. It wasn’t even 4 hours when I got a call from hospital with appointment date for 28th September. Since that phone call (and it becoming real) I’ve been a bit of a mess. I can’t concentrate. I’m worried to death that it’s going to be bad news.
ive had a couple of skin malignancies in the past, a SCC and a BCC, years apart and with these I was really calm and gut instinct told me that once I had procedure to remove them I would be fine. I don’t feel so calm right now.
can anyone share their experiences please
Yes I’ve told a couple of people. I in work on my own for couple weeks until next Monday and my mind is working overtime. I’ve seen a news report in news that some people who have had the Covid vaccine are seeing changes in their period cycle although I had my first one in December and 2nd one in March. I don’t know if it’s the same for post menopausal. My moods are all over the place at minute, I react too quickly and can cry at the drop of a hat.
Hi Dawn, I know what you are going through sweetie. I had post menopause bleed about a month ago. Contacted doctor and the doctor referred me on the 2 week pathway. I had my appointment yesterday. I have to tell you the staff are fantastic and will do their best to put u at ease I am sure. I went to the doctor thinking they could do some dirt if blood test to check if I had or hadn’t gone through menopause so going for scans was news to me. They did a baby scan and luckily I did not have to wait. Forgot what the full bladder thing was like! After the scan - just like baby one - and I’d nipped the loo they did an internal. They where a while doing this but talked all the time to put u at ease. After I had a 10 min wait then went in to see the nurse practitioner who said my womb lining was 7.5 and should be 4. She said next step is biopsy and said they would do it there and then. They tried but couldn’t I always have problems with smears I think my cervix is tipped or something. Anyway before trying she asked lots of questions about my medical history. When I got dress (u have to remove trousers and pants obvs) she said I would need to go to a different department that have move equipment to do a hysteroscopy and biopsy. I had hysteroscopy yrs ago before I had the kids to check my tubes were ok. Anyway my appointment is tues 21st and they said it should be 2 weeks later for the results. I left the hospital and stopped in Tesco car park for a little cry but then remembered she told me that there may be nothing wrong at all but all post menopause bleeding is fast tracked so they can catch anything early. I’m trying not to think about it but it is very difficult. I’ve not gone into full details with hubby cause I don’t want endless discussions with him. He does not cope with medical things. I don’t want to have to worry about him as well as me if u know what I mean. My sister knows and I said I’ll let her know how tues goes. Fingers cross things go well for us both. x
Oh Faye66. Thank you for reaching out. I’m being told every day that it could be this, that or the other. I’ve only told a couple of friends. I’ve got 2 grown up daughters who have their own children and I don’t want to worry them, I want to have answers. I’m also in a very new relationship (2 months) and don’t feel I can tell him yet, I don’t know him well enough to know how he would react. Please let me know how you get on next week, I’ll keep you in my thoughts for a good outcome. As for the crying, I’m doing that all time and I’m shouting at myself now as I’m fed up of it. It’s like I’ve already sealed my fate. I’m scared.
I work in a cancer info centre and always say to service users ‘wait until you get results but I know it’s hard not to worry’ I think I need to eat my words. Hopefully, my experience will give me insight on how my clients may feel and I will have a better understanding. Xx
I rang the Women’s Health Unit at the hospital today where my appointment will be. I asked if I needed a full or empty bladder depending on scan I was having. They told me nothing will happen at this appointment just consultation and possibly an internal examination. I would then need to ‘consent’ to any other procedure. Omg how long does this crap take (sorry ladies). They said once the consultant has done consultation and possible examination then they will decide what or if I need further investigations
Hi Dawn, time seems to slow down when you're waiting for appointments and a week feels like a month. My cancer was diagnosed on may 27th My leiomyosarcoma was discovered by accident when I went to A and E with stomach and back pain. Initially they thought it was a kidney stone and sent me home. It was unbearable by the next day so they did CT scan at 2 am and saw a mass on my uterus. I was sent immediately to the gynae ward and a few hours later I was told that I probably had endometrial cancer. Various scans were done which proved that I had leiomyosarcoma - a very rare, very aggressive cancer. I had my total hysterectomy on the 13th July. It was delayed for two weeks due to high blood sugar levels. I hope you get some news soon. Deb
Hi Dawn68
I gather that some hospitals do have a "one stop shop" approach where they do all the tests on a first visit. However others, like mine and , it seems yours, work differently. On my first visit I saw the consultant who asked a lot of questions about my medical history, past operations, menstrual pattern and age at menopause etc. (at 76 years old it required a lot of dredging around in my memory!) Then she did an internal exam. She said that there could be various causes for the bleeding and tests would be needed.. She was unsuccessful in doing a pipelle biopsy where a small tube is passed through the cervix to take a fluid sample. So she was going to arrange an appointment for an ultrasound.scan. This happened a few weeks later (Christmas intervened0 The sonographer didn't tell me anything about the results of the scan which were to be passed to the Consultant for assessment. and the next thing was an appointment for a hysteroscopy. So it was definitely a "one step at a time" process. It was just over 2 months from my first Consultant appointment to the op but this was all pre-Covid so my timescales might not be relevant now.
XXXX
Anne
(Class of 2015!)
Hi, im a bit embarrassed to say that at my age (58) i didnt know that bleeding can indicate problems! I have bled quite heavily for many years - often requiring two sanitary towels at a time as it was so heavy. To cut a long story short, i was in hospital for an unrelated issue when i started another heavy bleed, so my dr alerted the gynaecologist which started the ball rolling. I had a hysteroscopy and d&c , the results of which all came back normal. However due to my continued bleeding they did a total hysterectomy a few months later. Good job they did, as the pathology report confirmed cancer. What i want to tell you is that my cancer was stage 1 grade 1a ......very early, it seems, and no further treatment required. Both my mother and grandmother had uterine cancer, and my father had bowel cancer, so it is prevalent in my family. Given my family history, and the fact that i had bled for so many years, one might expect my cancer to have been more developed, but it wasnt, it seems. So, you see, its not always as bad as we may fear. I cant believe now, that i let myself bleed so heavily for so many years but stupidly i didnt understand the possible implications. My mother was diagnosed after me, but her carers were quick to move once they noticed spotting. I know its easier said than done, buy try not to pre empt things. Even if it does turn out to be cancer, there are a lot of different outcomes. Sending you healing thoughts.
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