Feels so surreal

I’m waiting on mri results. Had scans 12 days ago found fluid filled uterus. Had mri Friday just gone. The pain is unbearable every day. I don’t know what to do. Iv burnt my tummy on the hot water bottle trying to ease the pain. I use the tens machine on high. I’m loosing my mind x

Hi NewbieAndi,

It must be very different being on the other side of what you do. I'm not sure I upset my family, as they had already been through cancer with my husband. I decided that after years of looking after them, backing them up, etc, it was my turn. I sat back and let them run around after me. And recently one of them has been shopping for us, so I'm sure its all give and take in the end!  Good luck xxxx 

Why do you think you are upsetting your family? This really is time to concentrate on you. You are going to need a lot of physical and emotional support. It’s ok to feel you are struggling, it’s a lot to take in for anyone. You can’t go straight from A to Z. You need to go from A to B first. Wishing you good luck!

Oh hope you get some answers. I feel absolutely normal, no pain & feel like a fraud.

Thank you, hope you stay safe & well.

Thank you for your support. I think it’s because I’ve always been the carer, I don’t really know how to switch off and think of me and not others

Welcome to our little corner of the community  NewbieAndi, sorry to hear about your cancer diagnosis but wow it really is a whirlwind from diagnosis to surgery- brilliant. I think its easy to be on the outside but when its you its a whole new world and no I don’t think you should be used to it, this time its you, and when its you it feels so much different. I know other the years I supported people with cancer and when i was diagnosed at 37 with womb cancer in 2017, and 9 days from my 38th Birthday I just looked and went what a wonderful birthday present to get! I had all kinds of worries ironically at first was can i go on my pre booked holiday which had been intended as a scuba diving holiday with a week on a boat and week on the beach, but it didn’t happen that way yes I could go but it was no to diving from the boat. But not to be completely disappointed i did manage a few shallow dives from the beach with a one to one instructor so she as it happened could keep an eye on me and she was a nurse too bonus! I had the best dives ever it was Egypt too so the sea life i was in total heaven. But i was on my own on holiday and I struggled at night and in the evening when my thoughts crept in but i was blessed to meet some wonderful people who totally understood what I was going through and helped made my holiday special. But i was home Saturday and in surgery Monday morning it was very fast too. Maybe being quite is a good thing too so you don’t have time to dwell on everything.

I really wouldn’t worry about upsetting your family by the sounds of things I think they will take it as it comes and support you every step of the way. Plus hear you can be you, not the nurse, the patient with patient worries and there is loads of supportive people here.

sending you a big bear hug 

Thank you for listening to my worries 

Hi , I was diagnosed and had surgery 10 days later. It didn’t give me anytime to think, all I knew was that I wanted to get in get it over with and get the cancer out !  Sending you love x

• Reading your post sounded so like mine.  Covid test at the weekend op Tuesday and a nurse.  Also the thing I feel most is the guilt of putting my family through this.  I'm sure we are experiencing very normal reactions etc xx