Recurrence, fear, symptoms.. how to cope / stop googling

Hi Erin,

Your diagnosis is pretty much like mine, except I was 72 at the time, 3 years ago. I found that initially I thought about recurrence quite a lot, but tried to push it to the back of my mind. I knew from my husband having had cancer, that the further you are from the operation the better. And at 5 years post treatment you have the same chance as anyone else from having cancer. 

I was told they preferred NOT to give me radiotherapy in case I recurred and they had that in reserve. That suited me. I know you can't have too much radiotherapy. I think the further away you get from your experience, the better. I decided that if I could help anyone in any way with my experience, I'd hang around here!! Perhaps this is how I deal with it all.

I think you just have to make the most of your life, enjoy it, although I realise you have more issues than I had. Good luck. xxxx

Hi Erin82

I see you've only had one reply so far so thought I'd add my twopennyworth not that it'll be much help. As I'm only 9 weeks post op, aged 67. Was stage 1b, grade 3. Two weeks ago I had 3 brachytherapy treatments which theoretically means just checkups from now on but I've already been worrying has it spread - it didn't help I had a mammogram the week after brachy finished and was convinced it'd spread. (Which it hasn't, had the letter this morning)

I'm the same worrying if they zapped all the rogue cells and checking to see if my ankles have swollen. The worst thing is however much your family and friends empathise (my hubby's useless) they can't dispel the dark thoughts we have and the fears we can't manage to get over.

Hopefully, someone will reply and set your mind at rest. I've found reading this forum helps as everyone is so lovely, we're all in this together.

Sending hugs your way, Barb xx

Hi, I’m almost two years from surgery and brachytherapy. I found the most difficult period was after that when everyone thought I was recovering and should be getting back to normal. I went to Maggie’s for some face to face sessions with other women who’d had womb cancer and that was so helpful. We each have our own journey but we’re all different. Talking to like minded people is vital, even on forums like this. I’m still not well and waiting for a referral back to the hospital by my GP. I haven’t been seen in clinic since March. I am worried there’s something wrong but not necessarily the return of cancer. But yes it’s a worry but you have to be positive otherwise you will stop enjoying what should be your normal life. Even more difficult I know during these times of Covid.