Feel like I’m spending my life waiting.

Hi Abs61 i am so sorry this is happening to you. i know where you are with the waiting I had my surgery cancelled on the 7th September and am still waiting for another date. I am in lots of pain too. It does feel at times that you just sit waiting for test results or appointments. one day hopefully we will look back on all this and smile. I find heat helps my pain a hot water bottle is good.

Take care

Debbie

Hi Debbie-c, Thank you for your reply and help I’ll definitely give that a try. Sorry to hear about your cancelled surgery, this Covid has a lot to answer for. Hopefully we will both hear something soon.

Take Care

Angie‍

Hi Angie,

It must be really hard to have to wait for your operation date, it does make me angry, this is no way to treat those of us with cancer. I was diagnosed just as we went into the first lockdown and had a date for operation. Luckily, I was on the last booked theatre list but spent a very anxious week not knowing if it would go ahead, even wasn’t sure when I turned up at the hospital if it would go ahead. Consultant had contacted me with a plan B of medication or having an hormonal coil fitted. 

It is unacceptable that you have pain that isn’t being addressed, you deserve to be as comfortable as possible. Hope you get some proper medication for this so you can sleep and have an improved quality of life whilst you wait for your date. 

Keeping my fingers crossed for you getting a date soon. Sending you a big virtual hug.

Honey

Hi Debbie-C,

spitting feathers over your delay, fingers crossed for an early date for your op.

Hugs to you.

Best wishes

Honey

Angie i am so sorry you have been left waiting on uncertainty not getting some proper pain relief to help you to sleep better either. Waiting on an op date I know is nerve wracking enough. Plus dealing with pain and the the waiting on your Gp too. I’ve ended up with another kidney infection i was told by my consultant that he would insure that my Gp prescribed preventative antibiotics but it took me to seriously rattle the cage and now apparently a prescription has been sent to my pharmacy for my antibiotics both a course and of course some preventative ones too. It shouldn’t be this way, yes covid sadly has been pretty bad in areas i’ve lost a friend recently to covid so I understand its needs to be sorted but I don’t feel its except able that cancer patients and other serious illnesses should have such a problem getting the treatment they need. As for feeling like you’ve turned in to a grouch will is it any wonder you don’t feel great with everything going on its no wonder. As for some pain relief, i am on morphine as one of my pain meds but I also find meditation helpful to calm my mind and some lavender pillows help to relax me too. I have long term pain and in a very strange way I have learned to deal with it but it doesn’t make it go away for me but i want it to ease for you. There is some great meditation apps and youtube to help relax you it may help, or at least maybe help ease your mind to sleep.

sending you a big bear hug 

Hi Honey,

Thank you for your reply. I’m normally not too bad at waiting for things but because my CNS and Consultant had both said Mid November for surgery I’m getting restless and the pain isn’t helping. Thank you for your hug it means a lot, coming from someone who understands and doesn’t think you’re being unreasonable wanting everything sorted quickly.

Take Care

Angie‍

Hi GBear, 

Thank you for your reply and help. Your mentioning lavender reminded me that I had my Yankee Candle electric burner and some Lemon Lavender wax discs. Isn’t it strange how pain can drive all sensible thoughts  out of your mind, or maybe it was another senior moment.  I put it on last night and managed to sleep through until 7:30 this morning (sheer bliss), so thank you for that. I also took a page out of your book and rattled my GP’s cage, only to discover from the receptionist  that they had got my CNS’s email on Tuesday but because she had only put telephone consultation required and no details of why, the phone consultation was considered non urgent.  Go figure, I mean it was from a CNS for heavens sake, she wouldn’t be requesting a phone consultation if she didn’t think it was necessary. Anyway my GP phoned me back ten minutes later and my painkillers should be ready for pickup at Boots this afternoon.  Just need to stay positive and calm while waiting on surgery confirmation date, I’ve pulled out some old craft stuff I hadn’t finished to keep me busy and stop me over thinking things while I’m waiting. Thanks again for your help.

Take Care

Angie‍

No problem Angie, yes pain can distract us from our normal thoughts ,you shouldn’t of had to deal with what has gone on.  Good job you did rattle the Gps cage or you would still be waiting for meds, why they don’t read these letters and think about where and who has sent them is beyond me, by now it should of all be put firmly in place. I am glad those that you are now getting something to help with the pain and our course your mind, sleep is great medicine. So i am really happy you managed some good sleep. My pharmacy has at least got my prescription yay! 

Sending you a big bear hug  

Hi everyone, Well I finally got my painkillers, and actually slept for 9 hours straight. Feeling much better today and almost back to normal. Just waiting for surgery confirmation now, but that’s okay as I know it will come through eventually. Thanks again to everyone for your help and support.

Take Care 

Angie‍