endometrial cancer

Hi,

I'm sorry you find yourself here.

My only experience of chemo is nursing my daughter through it for breast cancer. From what I have read on here not everyone is affected in the same way. She found for the first week after the chemo she was better in bed. In spite of anti sickness medicine she felt sick and could only eat small meals or graze! The second week she could potter around the house, and the third week she was her normal self. We had to step in as she had an 18 month old daughter and her partner had just started a new job working away!!

Have you someone to care for you? You may need help at times. You will feel tired especially towards the end of treatment. All the best. xxxxx

Hello N.Sami

The best advice l recieved prior to having chemo following a hysterectomy for serous cell womb cancer back in April '20 was to keep a diary, note down all side affects and the times and doses of medications you will need like for example steriods, anti sickness, pain killers, sennacot for constipation, omeprasol etc. Keep it up to date.

Keep a note of all side affects, mental and physical and make sure you report them. When the oncology department know about them they can tweak your treatment and make it more suitable for you as an individual and you will not have to suffer so much from chemotherapy side affects. Left unreported they can go on to develop into long term side affects. Particularly peripheral neuropathy which can be debilitating.

Don't be afraid to use the helplines, really helps to talk things through. And get some incontinence pads to use during treatment. Its really difficult to manage to get to the loo in good time connected to the drip.

Best of luck x

Hi NannyAnny,

thank you so much for kind reply. Best wishes to your family.I’m staying with my daughter since I was rushed to hospital due to heavy bleeding. The pain is ongoing and I am having difficulty with digestion. I don’t know I feel like having gastritis. Well, Rushed to A&E yesterday again. I couldn’t tolerate the pain. Im not sure how chemo is going to work on Wednesday as I’m very worried but still hopeful. Thank you again.xx

Dear LouEbelle,

thanks for your suggestions.There was a time after all scans and I was told that operation can’t be done due to lymph nodes and spread to other parts. Bleeding everyday and pain can’t be coped. I m scared with the side effect mainly white blood cells and sepsis. I have booked gp for blood test and flu vaccine aswell. Good god!! I hope you are doing good since the treatment. God bless you XX

Dear N.sami,

This is to wish you well. I am so sorry to read you are in pain. After my last two rounds of chemo my blood results came back as low neutrophils (white blood cells) during that time l felt completely exhausted and cold. I think its important to regularly check your temperature as it will show if you are developing an infection which will need immediate treatment.

Thankyou for your good wishes 

Hi N.sami, I was recently diagnosed with stage 4b, low grade endometrial stromal sarcoma and was told it's incurable but I've got "many years ahead". I won't even do chemo or radiotherapy it seems... I'm on morphine and painkillers as well, sounds like we are in a similar situation... I don't really have any words of wisdom or tips because I'm new to this scary disease myself... Just best wishes, I hope you get better soon.

Have you been referred to an enhanced supportive care team and complementary care team (massage, diet, aromatherapy etc)?

Dear Valita,

After 1st chemotherapy, I had ache and pains every part of my body which was unbearable. I couldn’t even stand and walk at all. I hardly eat or sleep. That was the worst nightmare ever. But after 4 days of nerve racking pain I was able to eat and walk slowly, now I feel much better, less pain, less bleeding and not taking painkillers as how I used to. I wonder why not chemo or radiotherapy for you? Life is not easy and I feel like I can’t go back to my normal life. Though I’m still optimistic and trying to be happy with what I have. 
I was referred to a palliative care last week and spoke to the doc as well. And on the top that I’m in blood thinning inj. My family pray every day for my health. I hope you the best and stay happy. 

Dear LouEbelle,

After 1st chemotherapy, I had ache and pains every part of my body which was unbearable. I couldn’t even stand and walk at all. I hardly eat and sleep. It was unbearable. My family really took care of me. My blood pressure, temperature and food, I would say every possible way. Sometimes they used to be numb because of my pain, as they can’t do anything besides sitting next to me. I’m painless for the first time since my diagnosis. But still it is scary as I will have same side effects like last chemo. I wish you all the best for your health.
take care.