Anxious about recurrence

Hi TeddysMum,

I know how you must be feeling. I had two miscarriages and a threat with my first daughter, so I have always dreaded finding blood 'down there'. That's what sent me running to the doctor when I was diagnosed.

It could be a mild UTI, so don't panic yet. 

Giving you a big hug. (   )  xxxx

Thank you, that hug has helped a lot xx

This is also my fear TeddysMum I am almost 3 years since treatment ended and look every time I go to the loo.  Hopefully you will get some reassurance soon from your CNS and she can get you seen if she thinks its necessary.  When I first went to the GP with very slight spotting (before I was diagnosed) she said it was probably vaginal atrophy, where things get dry and can bleed.  It wasn't of course, but that is a possibility maybe in your case.  

Hugs, Lesley xx

Thank you, I think it's at the back of all our minds somewhere even if we manage to mostly bury it. My CNS called me back today and offered to see me tomorrow which was a big relief. Either way, she can reassure me all is ok, or get on with treatment as early as possible. 

Hello TeddysMum good luck for tomorrow. I have just been reading about your worry of reaccurrance its always a worry when we see spots of blood but of course there is lots of reasons that could cause it, its always a worry of reaccurrance I really hope that its not and your CNS can offer some words and advice of reassurance. 

I get occasionally blood spots been told its likely because of the recurrent uti but my gynae team aren't happy that my appointment keeps being cancelled due to covid-19 as it helps rule things out. That's the important thing really we need to know what's happening and what needs to be done to solve it. So I will have me fingers crossed and sending lots of positive energy your way and I hope you get good news tomorrow. 

Big hugs teddysmum.

Thank you xx.

Hello TeddysMum I don’t think the fear of recurrence ever goes away completely. Just wanted to send you a gentle Fairycake hug. I hope your CNS gets back to you quickly and that she’ll be able to reassure you. Please let us know the outcome. xx

• Hi Teddysmum when I recurred I had a discharge and a bleed not spotting. As ladies here said there are other causes. Back in March I had mucas discharge and blood from my bottom. I had a coloscopy and was diagnosed with radiation proctitis.  Sending hugs xx Dawn

Hi Ladies, saw my CNS this morning and after a good rummage around she announced all looks fine. Much relief. She's sent a sample away to check for UTI but says I can stop worrying. Thank you all so much for your support and hugs xx.

Hi TeddysMum,

Whew!!!!  When I was diagnosed they thought at first I had Vaginal thinning, which happens when you are older, apparently!!! 

So pleased for you xxx