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Post Menopausal Bleeding - Suspected Endometrial Cancer

FormerMember
FormerMember
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Hello

I am besides myself with worry.  I had an episode of PMB back in January, just a pinky discharge when I wiped.  Rang to make GP appointment and they sent me to see the nurse practitioner.  She had a look, took a swab, thought it was trush so prescribed medication for that.  The treatment seemed to work and I thought nothing more of it

Fast forward to March and it happened again, made appointment with female GP, who tried to do an examination but was not very gentle and it hurt, three attempts with different sized implements and she gave up, said she’d refer me for scans and to see gynaecologist.  Said I should hear within 2 weeks,  Scan appointment came for 2 weeks time and hospital appointment for 3.5 weeks time.  My husband by coincidence also had a scan booked the week before mine so we swapped.  External and internal ultrasound done and sonographer said everything looked fine apart from a slightly thickened womb lining but nothing else flagged up.  This helped put my mind at risk, got home to find my hospital appointment had been cancelled because my BMI was over 40 (private hospital doing NHS work) surgery remade me an appointment at main NHS hospital but it was another 1.5 weeks after the original one. Surgery said GP had reviewed scan and that it came back green and not red so just to attend appointment at hospital.

in the interim I found plenty of evidence which shows I should have been referred under the 2 week fast track, I’m 55, I’m overweight, I’ve PCOS and I’ve never had any children..all put me at higher risk of endometrial cancer.

i rang hospital and spoke to consultant’s Secretary so said my appointment was for general gynea clinic and if my womb lining was thickened he would more than likely refer me to hysteroscopy clinic which would take another 3 weeks for appointment.

as I have still to see consultant (appointment was for this coming Wednesday) I went back to my surgery and said it was not really acceptable that I’d been kept waiting so long and would now have a further wait.  Anyway they’ve now referred me as 2 week fast track and hospital rang on Friday to say they are cancelling my appointment on Wednesday and will contact me on Monday with an appointment, my file at that time was with the consultant..

i suspect by the time I actually see anyone it will be 6 weeks since my GP appointment (not forgetting they should have referred me in January).

I googled and googled and everything came up as stacked against me, last week the pink discharge returned and I just know they are going to find something horrible.

as my GP couldn’t do an internal examination I’m suspecting a hysteroscopy with just a local anaesthetic probably won’t be achieved although appreciate they do these things all the time and will hopefully be better experience than others my clumsy GP.

We are due to go on holiday in just over 4 weeks, my insurance company have said they will cover me even though it’s an undiagnosed condition so that’s one positive...but I’m still thinking we will have to cancel if my fears are confirmed, although it’s quite possible that test biopsy results might not even be back by then.

all I do is think about what is to come, I’m scared and upset and no amount of people telling me it probably won’t be anything to worry about I just can’t stop worrying.

  • Oh , you really have been having a rough time and I hope your consultant can help explain the bleeding that your still having, I wonder if they think its still to do with the infection you got our bodies are funny things great when everything is OK but not so good if they break down. I hope your able to get comfort over the weekend but have you been in contact with your consultant, CNS? About this continued bleeding. I had some slight bleeding for a short time but it did stop. Hope your start to feel better very soon and sending you a gentle hug.

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  • FormerMember
    FormerMember in reply to Fairycake

    Hi Fairycake

    i am feeling much better. Thank u for ur kind message & advice I have a Gp’s appointment on Tuesday 2nd July 

    I will talk to her about what has been happening she is also trained in Gynae so I have confidence when I talk with her . I am reluctant to talk to my CNS as she always says go to the Gynae Assessment Ward at my hospital & after last time having three internal examinations by three different Doctors in a space of an hour I felt much worse than when I came round from having my Hysterectomy.

    I think from being packed out to stop the bleed has made my insides feel very sore & tender especially if I stand up for too long in one place I find myself saying I need to sit down although I find walking ok 

    Best Wishes & Night Night SleepingSleepingSleeping

  • FormerMember
    FormerMember in reply to GBear

    Hi GBear

    Thank u for ur gentle hug

    I send u a gentle hug back Hugging

    also for ur kind message & advice as I have just written to Fairycake I said I prefer to talk to my Gp. I have a appointment booked with her on Tuesday 2nd July 

    I will let u both know how I get on & hopefully it is nothing to worry about & eventually it has to stop one hopes.

    Best Wishes & Night Night SleepingSleepingSleeping  xx

  • FormerMember
    FormerMember in reply to Galanthophile

    I'm in same situation, after 8 months of nothing, I has a slight pinky bleed for three days, went to Dr who said she's sure if wasn't cancer, had pelvic exam which she said was fine, sent me fie ultrasound  3 days later plus I had tvg, radiographer said all looks fine and she didn't see anything to worry about. So there was meas happy as Larry, then, j get a letter this morning referring me to hosp for suspected endometrial cancer. I'm absolutely bricking it... Why say it's OK then send a letter like that,...

    I'm so scared now, I rang a helpline and was told they probably jydt want to fully rule it out

  • FormerMember
    FormerMember in reply to FormerMember

    I have just found out that the admin at the Jr hosp, put suspected cancer on all there 2 week referral letters to stop people cancelling appointments, I'm not sure how I feel about this, any one elsThinking.. Thinking 

  • FormerMember
    FormerMember in reply to FormerMember

    How are things now, well I hope xx

  • Hi Balloons,

    Its good that they are being thorough, but to put your mind at ease a bit, 90% of people who have a womb biopsy get the all clear. I know it's stressful waiting for appointments though, try and take things one step at a time. 

    lots of love

    xxx

  • FormerMember
    FormerMember in reply to Arla

    Heya, just had a phone call from Dr, who reassured me my scans were fine but did say the lining of my womb was a bit thick, anyone know what that means??

    Got biopsy app on 5th August... Even tho Dr reassuring me again, I'm filled with anxiety.

  • Your womb can be thick for lots of reasons, the biopsy results will let you know what's happening for sure, I'd take comfort from what your doctor has told you so far, it looks like they just want to be thorough and make sure everything is ok.

    xx

  • Hi Balloons.

    At least their being thorough. I had a thick womb lining of 21mm. They gave me a biopsy and a hysteroscopy which both came back with good results. It did show I had an infection of the womb lining. I'm now booked in for a laparoscopy and a endometrial ablation I think it's called as I'm still having heavy periods and womb lining is still 11mm. 

    Good luck I hope all goes well and the results are good x

    50 something