Thickened uterine lining - nauseous with worry

Hi Diane

I’m am sorry you are suffering emotionally today. I have had the same discharge for a couple of years. And all was fine with my womb and lining and simply a symptom of the oestrogen deficiency. I thought the same feelings for weeks after reading the internet.

Hope it is resolved quickly. Wishing to speedy and positive results.xx

Please don’t think you are pathetic or self indulgent, you are dealing with difficult things at the moment and it’s very hard to get your head around it all. Sad is ok I think. When I first stumbled into this journey that was my predominate emotion, sad mostly for my old apparently carefree life, though of course it wasn’t really like that and sad for my family and colleagues. Sad is all right. At the moment you do not know what will happen and that is hard to deal with, so ring and seek advice about your symptoms and then act on that advice. I also felt guilty about my partner and have talked to him about this. Together we have agreed not to hide how we feel from each other. He is there to support me as I would have been there for him had things turned out differently.

Be kind to yourself. Use the support in this group or McMillan Helpline or depending on what happens maybe consider counselling or mindfulness. Wishing you all the very bestxxxxx

Hi Diane,

I agree with the other ladies. You're not pathetic or indulgent at all. You're being honest and telling it how it is, and that's absolutely ok to do that. It's the first step in dealing with all those negative emotions,  They're real and are what you're feeling. But they're not permanent. Things will get better. Be gentle with yourself, just as you would if you were supporting your best friend through this. Cry, rant as much as you need to for now. None of us can be positive all the time. Tomorrow is another day. Gentle hugs xx

Hey Diane,

This is the kind of malarky your head goes through whether you like it or not. But it is probably good for you, as the mind is trying to process conflicting things and it has a knock-on effect on the emotions. Bottling it up, being "in control" doesn't work. Let it out. The words "pathetic" and "self-indulgent" sound like what is sometimes called the "Poisoned Parrot" sitting on your shoulder spouting things that just make you feel worse. Just think instead that it is part of the process you have to go through. Weirdly, you will probably feel the benefit of it later on, believe it or not, as at some point you start to adopt an approach to it, an attitude, and you start adopting a strategy for dealing with it. But first you have to go through the horrible emotions. Can't avoid 'em. No point trying. 

If, however, the emotional turmoil carried on for too long, then there are counsellors that can help. A lot of ladies have used them, and found they got their thoughts and feelings in better order, and had strategies to help them deal with them. 

But it's early days, so when you've had a good cry, have a sleep, an iced bun, a walk in the spring sunshine, a movie, whatever you fancy, and get some equilibrium back. And come on here! 

Lots of love

Alison xxxx 

Hi Diane,

Don't give up, yet. I'm not a doctor, but the discharge could be hormonal, as someone else suggested. Your moods are probably tied up with hormones, too.

I know how you are feeling only too well, as I have said before. Hugs coming your way. xxxxxx

You ladies are just so unbelievably wonderful! 

I can only say thankyou for your fabulous support , knowledge and kindness. I feel that i can only be honest here about feelings as i want to protect my family from worry. I appreciate having the outlet very much! 

I feel perfectly ok again now - my moods seem so changeable from extreme lows to normal chirpy amd happy. I can't keep up with it myself! 

Thank for the advice to think of myself as i would if i was supporting a friend or family member - that resonated with me and i will try to be kinder to myself. 

I went to the walk in centre after the suggestion that i may have an infection.  They took my temperature and sent me on my way and said that i have no signs of infection and the fact there is no smell to the discharge its unlikely to be an infection and more hormonal or symptomatic of the other stuff i have going on. So i just have to wait and see and hold my nerve a bit better! 

I will bear in mind the support line if i get down again as it really is a horrible feeling that just comes over me in waves. I trust you ladies and know that it must be a normal reaction to feel this way and it won't always be like this. I'm going to a yoga class on Tuesday, maybe that will help to calm my mind a bit.

I've  had a lovely meal with my husband tonight and will watch a film in a bit and have given myself the weekend off worrying!! 

Thankyou ladies... i don't know what I'd do without having this outlet! xxxx

Hi Diane

I'm so sorry you are having a hard time at the moment - waiting and not knowing is awful.  I agree with Alison, that googling anything is not helpful.  There are many other things it could be.  I had thickening of the lining in 2008 and 2014, neither time was cancer.  It was early stages cancerous in 2018, and treatment was all over very quickly.

I guess at your age, you will be facing difficult feelings regarding your desire for children, and the fear of potentially losing your uterus.  Having people to talk to, or groups of people in similar situation, or books about such things might be helpful?  If you can talk to your partner about how you both feel, about having children or not - it might help him support you on your journey whatever that might be.

Some people find painting, poetry and physical activity helps, going for a walk, and telling yourself positive things about you, your partner, friends and your surroundings.

I do hope things get moving for you quickly.

lots of love, and do keep us posted - best of luck, 

B x

Hi Diane

Sorry - I started writing my reply above before you had posted your second post.  It somehow seems a bit late in the day now and out of place xx good luck

B

Hello ladies,

Had my appointment today for histology results from the hysteroscopy and biopsy. I haven't received any letter or call in the 5 weeks since and took this to be a good sign. Unfortunately not,they got the results back a few days after my surgery and they have just sat in my file and a letter from the consultant was put in my file and not posted out. 

So, it came back that i have'  complex hyperplasia with atpyia ..at least'  - i saw two consultants at the appointment,one was an oncologist and they advised total hysterectomy as they feel its nasty and will probably show cancer once everything is removed. 

They said mirena coil therapy is in theory possible but they feel its too big a risk as to them it looks nasty. I couldnt get to the bottom of exactly what lools nasty and asked uf atypia or abmormal results are graded or if they can see that they are on the high end of abnormal, but they said not. So whilst there isnt currently a cancer diagnosis they feel its because they havent been able to biopsy the right bit.  I mentioned about the watery discharge after periods that I've had and the pain in my hip/leg and this seemed to concern them more and they said it was often a symptom of Endo cancer and its probably the ovaries. 

I am naturally pretty devastated as it means no children for my husband and I. and it feels like quite a big step. .. albeit necessary.

Given te things ive read on here,i was armed with loads of questions. Firstly i asked for keyhole surgery as ive seen that the recovery time can be quicker. My consultants said she isnt trained in that, and will try to get someone else in and she will be present -but she needs to work out dates. She did seem reluctant to commit to offering that, i feel if its medically possible I'd much prefer it. She asked to do another biopsy today and decided that as I'm away for the weekend for my birthday i didnt want to,as i dont want to be in pain and uncomfortable for the weekend and fundamentally it won't change anything- as they already think its cancer and I'm having the hysterectomy and i don't want to be rushed in sooner.

I have a family holiday for 2 weeks the first two weeks of June and have asked for the op to be after that. The consultant agreed,she is very nice,which helps. However, she did say we can't delay this too long  -  which i understand,however its taken 6 months to get to this point from my first doctors appointment about the problems i was having... so really will another few weeks make a difference?! My husband wants me to get it done asap and take the apointment they have offered me in two weeks-but i just want to enjoy our holiday and have some head space to process all of this and have some normal time with family. 

It feels like a lot to take in,even though I've had a sense throughout all of this process that it was going to be bad news.

Its a sad day, but i have to think positively that at least I'm on the way to dealing with whatever is causing the problems and in the end it will hopefully be ok.

xxxxx

Hi Diane,

Really sorry to hear this. You have now got to put yourself first for a while until you are sorted. It sounds as if you have a nice consultant.  xxxxx