Hello!
I’m so grateful to have found this chat group.
I was diagnosed with Pagets Disease of the Vulva about three years ago. It’s a very rare form of cancer and, unfortunately, there is not very much known about it. I had surgery three years ago, did a few rounds of topical treatments and have had multiple biopsies since my surgery.
This has definitely been extremely challenging and I’m hopeful to find support here as I have felt extremely isolated in this illness.
Thank you!
In gratitude,
AndreB
Hi AndreB,
Welcome to the group, although I am sorry you find yourself here.
You’ve come to the right place for support 
. I had a diagnosis of squamous cell carcinoma in 2021, so whilst not exactly the same as yours, it was Vulval cancer.
Always happy to chat
Take care,
