Hi, I am absolutely terrified. About 6 weeks ago it started hurting to pee. It got worse and I could feel something down there so got an apt to see a nurse at my local GP practice. She said it was "a cut" and told me it would heal. 2 weeks later it was still painful so I went back and another nurse took one look and referred me under the 2 week wait. My apt was on Friday and the cancer specialist looked at it and straight away said it wasn't right and was suspicious.
He has done a biopsy and now I have to wait but he knows his stuff so I am assuming the worst.
I have 3 kids and the youngest are 6 year old twins. I am so scared that I won't be around for them as the consultant was already talking about checking lymph nodes and that the area is quite near my urethra which could be problematic.
My mind already has me dead and buried. I don't know how to cope with this as I have severe health anxiety anyway. Thanks for listening.
Hi Ems78,
I am sorry you are having a difficult time. I totally understand your worries. I received my diagnosis last year and I also have children.
Have they said whether they think it is pre cancer or cancer? In my experience they use the term suspicious for both. It goes without saying that I am not suggesting pre cancer isn’t a worry, but for me it was less worrying.
The waiting is the worst! I really hope you get your results real soon and they offer the best possible outcome.
I had my lymph nodes checked after my cancer diagnosis and was advised it was as a precaution.
I know the above probably doesn’t offer much, if any, reassurance. The wait is hard and I have everything crossed that the wait isn’t too long for you. I know it’s far easier said than done, but try to distract yourself from worrying. For many, vulval cancer is treatable. If you would like some emotional support then feel free to contact the Macmillan support line on the phone number below.
Here if you want to chat.
Take care,
