Extra mammary Paget’s disease

Former Member
Former Member
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Hi my name is Margaret, I’ve recently been diagnosed with extra mammary Paget’s disease, I’m currently using Aldara (imiquimod) cream to shrink the area before surgery.

im struggling a lot with the pain, I am currently using morphine and ice packs as well as soaking in the bath to try help subside the burning pain.

I was wondering if anyone has any tips on how else I can manage the pain.

Thank you in advance 

  • Hi ,

    My diagnosis is different to yours and I have no experience of Aldara. So I’m not much use to you I’m afraid, but I wanted to stop by to say if you just want a friendly chat then I have had vulval cancer and surgery to remove it so do have some understanding.

    Take care,

    Vulval cancer warrior xx

  • Former Member
    Former Member

    Hello Crowmargaret Like you I have recently been diagnosed with EMPD and have this week commenced treatment with Aldara. The plan is to apply the cream 3 times per weeks with a review by the Gynae/Oncologist in 8 weeks. I am only on my second application and so far so good but I am prepared for pain. My worry is that perhaps I am not applying the cream correctly or extensively enough. I didn't receive any hands-on instruction which I think would have been helpful. Any advice. There is an international EMPD group with closed Facebook page. Most contributors are in USA but I have identified another 2 in UK. Regards  

  • Former Member
    Former Member

    You might ask about Gabapentin to help with the pain.I have vulvar cancer and need surgery Exenteration anterrior and posterrior .In the early days Gabapentin helped.

    Dream

  • Hi Peggy80  I have friend requested you so that we can chat about Aldara

  • Hi Crowmargaret I have sent a friend request, I am happy to chat about Aldara application.