I was diagnosed with uterine cancer October 2022 and had a radical hysterectomy with bilateral salpingo-oophorectomy. I had 2 tumours stage 1a & 1b but was told it was a curative op with a low chance of reoccurrence. About 6 weeks ago I had some vaginal bleeding which has been intermittent, I have had pain that is becoming more persistent just inside my left hip.
I contacted my oncology team and had a MRI scan last Wednesday, on Monday they called to say that the results had come back and I was to come to the hospital today. So as you can guess, I'm expecting the worst news today. I've been silently stalking this group for people's accounts of symptoms and treatment journeys. Today I'm joining in, so worst case or not, my story will be here for the women who are yet to come, and are searching for information will see.
So hi everyone, you are an amazing bunch of people who have inspired me.
Hi Lee75 and welcome to the group.
I’m sorry you’ve been through cancer before and are now facing more worries, but glad you’ve joined the group to share your story and hopefully find some friendly support. I’ve had extensive surgery for recurrent cervical cancer which had grown into my vagina, and had chemoradiation as my first line of treatment, so although my story is not the same as yours, I can empathise with your situation.
keep chatting here, and other ladies will do their best to support you through whatever might be next for you. Sharing your story for others is much appreciated, as this group can tend to be a little quiet compared to some others. All the best for your hospital appointment today and I hope you get a plan to move forward if anything is found.
Sarah xx
Hi Sarah,
Thanks for taking the time to reply, I've seen that you're really supportive and take the time to reply to lots of people 
. I feel as if the clock is ticking slower today than other days. I wasn't sure if this is the correct forum for me, but without a uterus or cervix it seemed like the most natural and likely one
Hi Lee75
It’s absolutely fine to be in this group and any others you feel might be helpful for you. I’m in the cervical group without a cervix, the womb group without a womb and the vaginal group without a vagina amongst others! I could have a recurrence of my cervical cancer though I don’t have a cervix any more for example.
When I first came onto the community I joined all the groups where I had been directly impacted by my cancer, and thought I could add some of my experiences, be it with hpv or having stomas- so I pop up in all sorts of places around the community!
Every day seems endless whether you are waiting for a diagnosis or test results-time just drags and we’re impatient to know more. But hopefully today will give you the answers you need.
Sarah xx
So I've just had my appointment, there is a 3cm tumour at the top of my vault. Had biopsies taken today to establish whether its reoccurring endometrial cancer or something different. A body CT scan
lanned to see if its spread anywhere else results in 2 weeks with a treatment plan
Hi Lee75
I’m sorry to read your news-I’ve been through a recurrence myself so I understand how horrible it is to get news that there’s something there, whether it’s a recurrence or anything else. At least you won’t have too long to wait to find out your biopsy results and get a treatment plan. Please keep us posted with how things go.
Sarah xx
hi Lee75
I didn’t have any symptoms of my reccurence-luckily it was spotted at a check up visually. Followed up by CT, MRI, petscan and finally surgery. My story is on my profile if you click on my name.
Sarah xx
