Hello everyone.
I'm a 67 year old man who moved to the East Riding of Yorkshre last December and is having to deal with a cancer diagnosis.
I'm just starting cycle 4 of 12 of chemo for treatment of a mass in my peritoneum, with an unknown primary cancer. The oncologist has advised me that it is not cureable and gave me a prognosis of 12 months, which was a bit of a shock! I'm being treated with Ironotecan/Capecitabine and Bevacizumab and would be interested to hear from anyone who has undergone a similar experience.
I have to say, on low days I do wonder why I'm being treated at all if it isn't cureable, but I have to have faith in my oncologist, at the same time as hoping his prognosis is wrong!
Any advice would be gratefully received
Hello Brian (BrianM1106 )
I am Brian, one of the Community Champions here on the online Community. I have just noticed your post has gone unanswered.
I understand where you are with your diagnosis - I sometimes look at the word "prognosis" and think - do they really know and I am going to prove them wrong.
I don't know if you are aware there are two other group you can join on the Community where you will find additional support and "meet" others on the same or similar journey as yourself and here are the links to those groups:
Living with incurable cancer forum - patients only and
Once you click on the links i have given you and the pages open up, click on "join" on the black banner at the bottom of the page. Once you have joined the group you can start a new thread and introduce yourself.
I hope the above helps and I wish you well moving forward.
Best wishes - Brian.

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Hi Brian - My name is Dawn and I am 64. I was diagnosed with CUP in 2022 and was given a similar prognosis, I had a liver tumour and groin tumour both of which were removed after 6 months of chemo had shrunk them down. In December 2024 I was found to have further cancer in lymph node in groin and a bartholins (vulval) cyst tumour - they think it may be my primary. Tumour removed and 27 sessions of radiotherapy and more chemo and I'm doing ok. CUP is very rare - I am in touch with a lady who was diagnosed 10 years ago and she is still doing really well - positive thinking (even though I know its hard at times) and looking after yourself. Sending best wishes
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