Hi I am wondering if anyone has had the same treatment as me, and what experiences they have had with EC. I am starting my fourth cycle of pacli and carbo tomorrow, and then I will be 3 weekly EC for four cyles. I have been relatively ok with the pacli and carbo. The worst I have had is bone pain from the zarzio injections and some fatigue. The EC is making me nervous as the nurse said that people tend to feel more sick with it. It's so hard to know what to expect, or even how long the session will be! TIA
Hi Karend78
I'm currently on a Pembro/Pac/Carbo combo for TNBC with a switch to Pembro/EC later down the line. I originally started on EC and had one single dose at the end of April before my treatment was changed to my current regime towards the end of May.
I had the dose on a Friday and rather than being on a drip, the nurse actually administered this and the infusion was quite quick. I felt a bit rough after and on the Saturday with mild fatigue and nausea, but on Sunday the fatigue peaked to the point that I stayed in bed all day, although the nausea stayed at the same level. I phoned the helpline on Monday morning as I was concerned the fatigue was excessive and spoke to a lovely lady who told me the fatigue was completely normal and not to worry if I just needed to stay in bed for now. Interestingly after this conversation, I picked up quite a bit that day, then felt much better on Tuesday and would say I felt back to normal on Wednesday and for the rest of that cycle.
If you have very persistent nausea and the anti-sickness meds you're prescribed don't help, you can ask to get these changed. A fellow patient in my chemo suite did this and it worked for her.
Hope this helps and good luck! x
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