Hoping for some encouragement…
Hi all. I’ve just come back from my first oncology appointment. My head’s in a total spin and I really just need to hopefully hear a bit of positivity and encouragement right now.
CT scan has revealed potential nodules on my lung and I’m now waiting for a PET scan to clarify if cancerous, but it felt like the oncologist was preparing me for the news. They’re also referring me for a head CT as I mentioned I keep getting tension headaches and mixing my words up, though she suspects this may be stress.
I’ve also been told that where my lump is situated they may not be able to operate as it’s too close to the chest wall and muscle, but will only know more in three months time after a CT to see how chemo is responding.
I’ll start paclitaxel weekly for twelve weeks, with carboplatin every third week, and then will move on to ECT for another 12 weeks with cycles every three weeks.
I feel like my world has just been ripped out from under me once again by this new blow, and just wondered if anyone else has been in a similar situation and can share any positive support?
Hi JanePHerts
I am so sorry you are facing a PET-CT and a CT of the head to fully understand what’s going on. My TNBC had spread to my liver and this was picked up as an incidental finding on an abdominal CT I had had to investigate diverticulitis. I then needed a PET-CT to confirm and a liver MRI to find out more. The waiting for appointments and results was truly awful. Mine did confirm there was cancer in my liver but fortunately nothing else. I hope your own situation doesn’t throw up new horrors.
Going through treatment isn’t anyone’s favourite thing, but it’s quite doable for most people. I hope the lung nodules and headaches are not sinister and that the treatment makes your primary tumour operable, but if not, they will have a continued plan for you. I reached remission through treatment (I was first diagnosed in 22) and I am still here and stable.
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