Triple Negative Breast Cancer Reoccurrence

5 replies
26 subscribers
934 views

Hi all,

I'm hoping to find people who have been in a similar situation to me.

I was diagnosed with Triple Negative Breast Cancer in April 2023. I had 12 weekly sessions of carboplatin, paclitaxol and immunotherapy, the had 4 cycles of EC and immunotherapy every 3 weeks.

My lumpectomy was in October 2023 and in December 2023 I was given and all clear with a complete pathalogical response. I still had radiotherapy and more immunotherapy to prevent a reoccurrence with treatment finishing in July 2024.

In March 2025 I had a mammogram and they found a lump in the scan that turned out to be a tnbc reoccurrence. My CT scan showed no spread and I had a mastectomy in April 2025. They were able to completely remove the tumor and it hadn't spread to my lymph nodes.

Had my oncology appointment today and they have said my situation is rare and there is no treatment protocol for it. My oncologist had chosen a chemo for my that comes with some side effects and a higher risk of a second cancer due to my previous treatment.

I now have to decide whether to have the chemo or no further treatment. If I don't have chemo I have a 72% chance of being here in 10 years compared to 80% if I do have the chemo.

I have no idea what to do for the best. Has anyone else been in this position and what did you do.

Thanks in advance all xx

Daisy53 7 months ago

Hi Sunshine15

I'm Daisy53 one of the Community Champions on this forum. I'm sorry to hear that you had triple negative breast cancer and that you have had a recurrence. I was first diagnosed with triple negative breast cancer in 2020 and in 2023 I was diagnosed with a recurrence after having a CT Scan. I had to have chemo because I got a different breast cancer in my other breast and there was cancer in one of my lymph nodes, that's why I had to have the CT Scan, which was lucky for me otherwise the recurrence wouldn't have been picked up until my next yearly mammogram.

I had very few side effects while on chemo, mostly fatigue.

Wishing you the best of luck whatever you decide to do.

Best wishes

Daisy53

Sunshine15 7 months ago in reply to Daisy53

Hi Daisy53,

Thanks for coming back to me and I'm so sorry you had to deal with a different type of breast cancer. It's a truly awful disease.

Glad your side effects were minimal.

I hope your now living your best life.

I'm still not sure what to do but I have some time to consider my options.

Best wishes for the future. xx

Daisy53 7 months ago in reply to Sunshine15

I am thanks Sunshine15.

Elaine48 17 hours ago in reply to Daisy53

I would have the chemo with this type of cancer they cant tell if its gone because it cant be detected until tumour forms which is why its harder to treat even with chemo some cells can still grow chemo will have no effect on them but having chemo is giving you a chance of killing any cells that cant be detected if there is any its just my opinion chemo only treatment that gives us a chance with this cancer

Sunshine15 9 hours ago in reply to Elaine48

Hi Elaine48,

Thank you for your reply.

I did have the chemo in the end, 4 cycles of TC Chemotherapy. It was tough but got through it, recovering now and praying it doesn't come back.

I hope your well.

Take care xx

More from this forum

Triple Negative Breast Cancer Reoccurrence