I was diagnosed 17th December as TNBC stage 3 with numerous lymph nodes involved (more substantially than the actual tumour in the breast). I had to wait until 3rd Feb for treatment to even start which should be 4 cycles of Paclitaxel / carbuplatin and immunotherapy followed by 4 cycles of EC and immunotherapy before surgery is even going to be contemplated.
As a result of reactions to this that and the other including the antibiotics and paclitaxel, nearly 3 weeks in hospital including 4 days in critical care as a result of the reaction to the antibiotics, only 1.5 treatments out of 8 i should have had to date have actualy taken place.
AT 8pm last night i got that dreaded phonecall from the hospital to say my one of my bloods is out of the parametres for chemo on Monday and i've got to wait for a deceision to be made as to whether i can have the chemo and immunotherpy.
My lymph nodes had reduced to nothing with just that little bit of chemo that i've had but now having waited since 3rd March when my last chemo was (well half of the chemo was and it was also missing the immunotherpy) my lump is growing again. Im absolutely petrified having lost my youger sister to TNBC in September 2023 (neither of us have the BRCA gene mutation).
I spent the whole of last night crying - i'm sure my body is telling me that it doesn't want ot be treated
Thank you - most of the time i have remained positive but that phonecall was just the last straw i could cope with 
I had 8 or 9 lymph nodes affected and the mass was the size of an egg whilst the tumour in the breast was only 1.3cm on ultrasound but 1.7cm just 2 weeks later on CT scan. For them both to have shrunk virtually to nothing i had been ecstatic then to find them growing was a big kick in the teeth.
However htis morning got a phonecall from my oncologist and he's authorised the treatment for tomorrow so hopefully back on track again. Just got to hope i don't react to anything and that my slightly out of parameter blood levels don't cause me any problems.
