Help with report

FormerMember over 5 years ago

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Im new here, Ive been recently diagnosed with TC and I had my I/O on sept 9. I have a pure seminoma and im at T2 from pathology report. My CT scan came in today but i dont see my doctor until next week. Im hoping theres someone here who has some medical knowledge and can help me interpret my report. Thank you.

Findings:Lung bases:The lung bases are clear. The heart size is normal. No pericardial or pleural fluid.

ABDOMEN:No free fluid or free air.Liver and biliary system:The liver is normal in size and enhances homogeneously withoutfocal mass. The portal vein is patent. No intra or extrahepatic biliary ductal dilatation. Noradiopaque gallstones.Spleen:The spleen is normal in size without focal lesion.Adrenals:The adrenals are normal in size and configuration.Pancreas:The pancreas enhances homogeneously without mass or surroundinginflammatory changes. No pancreatic duct dilation.Kidneys and ureters:The kidneys are symmetric in size and enhancement benign rightrenal cyst.. No suspicious mass or hydronephrosis on either side.

Vasculature and lymph nodes:The abdominal aorta is normal in caliber where visualized.The celiac, superior mesenteric and bilateral renal arteries are patent. 9 mm nodulararea of scarring versus external iliac lymph node on the right breast seen on image 3-6of series 3. No additional conspicuous abdominal/pelvic lymph nodes.

PELVIS:No free fluid. Genitourinary system: Postsurgical changes of right orchiectomy with associatedinflammatory stranding. Small fat-containing left inguinal hernia. Suggestion of smallleft hydrocele.

Bones and soft tissues:No aggressive osseous lytic or blastic lesions.

Impression: 1. Post surgical changes of right orchiectomy with associated areas of scarring in the right lower quadrant inguinal soft tissues. There is a 9 mm area of nodularity adjacent to this area of scarring in the right external iliac chain. This is indeterminate between anodular area of scarring versus prominent right external iliac lymph node. PET/CTversus Follow-up CT in 3-6 months is recommended to document stability.

FormerMember over 5 years ago

Sounds like my results so let me explain what happened, I had nine millimetre in same area and was due to have three cycles of treatment then out of blue surgeon called at nine am and said think it is post operative related. My head was in spin what to do having two professionals contradicting each other definitely different. In end waiting couple of months and turned out surgeon won the bet and saved my unnecessary treatment at that time. Unusual place for first landing site he said although not impossible. Hope this helps

Kind regards

Dougie

Tony soprano over 5 years ago

each case is different and each person reacts different to things. The one thing I had to come to terms with last time, and this time as I wait for another scan is the fact that it’s all beyond our control. At least the physical part. But what we can do is try to learn to control our emotional self. This is what I’m trying to do. Concentrate on keeping my mind as healthy as possible and in the best place possible. I’ve decided to stop googling things and asking people questions about symptoms etc. It doesn’t do me any good. It just makes me more stressed. It is impossible to completely forget about what is happening and it’s really hard. Last time I struggled more mentally than physically. I felt horrible physically and was bed ridden for days. But it passes. On the other hand my mind and soul didn’t recover for over two years. Like I said it’s different for everyone. Keeping busy is what I do. After surgery waiting for results and decisions to be made by consultants is a horrible part of it all. All I can say is your a hell of a lot stronger than you think. It takes something like this to make us realise how tough we are.

Tony Soprano

Classical Seminoma, initially stage one.

Oncologist initially unclear if elevated lymph node is due to cancer. bumped up to stage two B after CT scan 3 months later. Further spread to 2 lymph nodes and increase in size.

Undergone 3 cycles of BEP at Derby Teaching Hospital and had the all clear on 9/2/17

Now on ten years of surveillance

FormerMember over 5 years ago in reply to Tony soprano

Thank you for all the replies and encouraging words. I have an update, my oncologist couldn't find the 9mm node on the CT scan and said that I can have surveillance or a shot of carboplatin. According to her I'm 80% already cured with orchiectomy. She suggested I do the surveillance but since I have rete invasion I'm leaning towards the carbo shot. I dont know if 2 would be better than one. I want to make sure I am done with this. These choices are not easy.

FormerMember over 5 years ago in reply to FormerMember

Hi dB,

what great news! I suspect that enlarged node was due to it being effected by the surgery.

There are several threads on here that discuss the merits or not of having the carboplatin shot, does it doesn’t it reduce the chances of relapse. It could be unnecessary treatment that has no long term benefit.

One of the things I find strange is that as the non experts us patients have to make decisions on our treatment. I always ask the doctor - “what would you do in my situation?”.

great news, take care

dan

FormerMember over 5 years ago in reply to FormerMember

Thank you! I was hoping for stage 1 seminoma. Its odd because she looked at the exact same CT scan but she said she didnt see anything. I dont know if I should get another opinion but I'm sure my oncologist wouldn't risk unecesary treatment unless she was absolutely certain. I dont want to do the carbo for nothing if theres something there. Also since im a T2 stage 1B should I do x2 carbo instead on one? The more questions that get answered the more questions I have.

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