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My mother (57 yo) was diagnosed in July 2024 with a very rare and aggressive type of cancer: Monomorphic Epitheliotropic Intestinal T- cell Lymphoma ( MEITL), a subtype of non- Hodgkin lymphoma. She began treatment with CHOP chemotherapy, then moved...
I received a diagnosis of Mycosis Fungoides a few weeks ago. Early stage as I only have a few patches and therefore treatment of a steroid cream My struggle is with how to view this condition. I fell guilty if I tell people I have a form of cancer and...
Hello i'm hoping someone can help me...My 59 yr old husband has just been diagnosed with this rare type of blood cancer peripheral T Cell Lymphoma & i'm really struggling with the diagnosis, everything i read on the internet have such negative outcomes...
Hello I am French residing in UK, and my sister is in hospital in France, with Lymphoma T Cell. She became unwell and hospitalised very rapidly, in October 2024. they have started a chemotherapy called CHOP, on 24December, she is also receiving blood...
Hi , my name is Clive living in Portugal My story started on 11/11/2024 with a large lump removed from under armpit, eventually getting the result after Xmas witha few question marks from biopsy, but generally a strong possibility of T cell angioimmunoblastic...
Hi - My wife got dignosed with Nkt Cell Lymphoma in 2023 - she had chemo radiation chemo (gelox). She then got a clear PET scan. Unfortunately she relapsed in October Nkt Cell Lymphoma has spread to skin. She is currently getting chemo GPD regium plan...
I have just found out about this community forum. My mum has T-Cell Lymphoma stage 3 - we are waiting for treatment to start. I am trying to keep my mum in the best spirits possible but am struggling to find ways and unsure what to do to help her. I don...
Hi, my husband has been diagnosed with an extremely rare form of t-cell Lymphoma (MEITL) in May 23. He has had a really hard time since going into hospital end of April, and remains an inpatient due to the complexities of his illness. He suffered a perforated...
Hi, i was eventually diagnosed with MF 10weeks ago, I've been getting puva treatment, which commenced prior to my diagnosis.Tomorrow will be my 25th session out of 30, it's been a positive process and gave me back a sense of normality. However the...
Hi, my 13 yo son is currently in the maintenance stage of treatment for t cell lymphoblastic lymphoma. He's on a few different oral chemo drugs and a few other drugs but he has really struggled to take them so far and resorted to using an NG tube. He...
