I just want to drop in past to wish all our new and long standing group members and their families a healthy and safe 2023
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi. I’ve recently been diagnosed with mycosis fungoids after years of being told I just have eczema. I don’t have much information on treatment or what stage it is so far as it was only confirmed in the last few days. I had an ultrasound which showed...
Welcome to all those who joined us over the past month. We are so sorry that you had to find us but you have found a supportive place where we all understand what this blood cancer journey is like. We are a rather exclusive group of people and with...
Hi I am female, 51 years old and in the midst of trying to get a diagnosis. I saw a dermatologist for patch testing due to itchy hands (which revealed nothing) but the dermatologist's eagle eyes spotted my chronic rash on my trunk and immediately thought...
Hi, My dad has suffered with undiagnosed T cell lymphoma for 10+ years. His skin has been red, rashy, sore and most recently weeping. He got taken in to hospital around 9 weeks ago because he was dizzy and couldn’t stop being sick. His eye sight was...
