Dad delayed palliative chemo

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Hi,

My 78 year old dad was diagnosed with stage 4 stomach cancer in November (more information written in my profile). They said it is through most of his stomach and also the top of his oesophagus.

He doesn't want to know his prognosis, but from what I have researched, it's not good. 

They offered him palliative chemo, which he had his first round off just over 4 weeks ago. He didnt have terrible side effects, a few days of nausea and fatigue. 

He was due his second round of chemo Thursday last week, but the day before he experienced bleeding from his bottom and had tarry stools, and had been feeling dizzy that day and the day before, and got admitted to hospital. It was the tumour was bleeding, so they cancelled the chemo and gave him radiation treatment to stop the bleeding.

He was in hospital for 5 days and was just left in his bed for most of that time.

When he came out of hospital he was feeling weaker because his haemoglobin count had reduced due to the bleeding and he jadnt used his legs much over the last 5 days. 

Before his diagnosis he already had issues walking as he has arthritis in his knees.

But the hospital phoned him on Tuesday just gone (2 days after he was discharged) to say they had booked him in for chemo next week. I was so happy that they thought he was well enough to start treatment again. I spoke to his macmillan nurse that day as well and she said the dr had reviewed things and thought he was well enough to carry on. She also said the bleed of the tumour is quite common, and wouldn't effect his prognosis.

But my dad suffers with chronic anxiety and he told me that he doesnt think he is strong enough to do the chemo as he cant walk very far and he gets out of breath.. I phoned the Macmillan nurse again and the chemo department to ask if they could arrange support for him mobility wise for his chemo appointment, and then said that could be arranged.

However, my dad's oncologist phoned him for a review yesterday before commencing chemo. I could only hear what my dad was saying  and to start with it sounded like the oncologist thought he was okay to go ahead, but my dad then told him he felt too weak and couldn't walk up stairs. So the dr has cancelled it! 

My concern is that my dad's anxiety is making him think he is worse than he is. Yesterday morning he had a blood test booked and he was worried he wouldnt be able to walk into the surgery. But he did...there is long winding ramp and he walked up that. He even said he was worried that when he got into the nurse's room he would be really out of breath, but he said he wasnt.

Also, he hasnt even tried walking up any stairs. I have been making him walk to the front and back of the house, and he did 7 laps of that in one go yesterday, so I really do feel he is strong enough, he is just letting his anxiety get the better of him, which has led him to cancel his treatment.

The oncologist also said to him that the chemo might not even be doing any good for him, as there is only a 30% chance it will work. I never knew the outcome was so low, but I guess that is still almost a one in 3 chance of prolonging his life.

We were waiting from a call back from the oncologist yesterday if he had received his blood results, but we never received it. The oncologist also suggested a blood transfusion to get his strength back up. That would be great, but this is also taking time and delatkng his next treatment, which is already a week and a half late.

I'm so worried and I dont know what to do.

Does anyone have any advice?

And also, does anyone have any success stories of chemo working at this late stage of stomach cancer? I know it cant be cured, but I want the spread to be put on hold for as long as possible.

I love my dad so much. I want him here as long as possible. xx

  • I am so sorry to hear about your dad.  It is always a balance between the impact and benefits of the treatment.   It will help your dad physically and mentally to encourage him to walk even a little everyday and eat high protein foods.  It’s important to hold on to hope and so perhaps it would help you to speak to the specialist nurse who will be part of the team looking after your dad.  A delay in treatment is very common as they need to ensure your body will cope with the chemo.

    I know that SDH who posts in this group has shared really positive experience about Stage 4 cancer 

    Good luck!

    Jac

    Life is what happens when you are making other plans!  
     
     
  • Hi Jacquiw10,

    Thank you for your response.

    I'm finding it quite hard to find hope at the moment. When he started chemo I was trying to think positively and hopeful that the chemo would work, but having had all this go on, and finding out its only a 30% chance bas left me feeling hopeless.

    I know I shouldn't, but I constantly google things and keep finding that chemo is not very effective for stomach cancer.

    A MacMillan support worker who liaises with my dad's macmillan nurse called me this morning. I explained to her that I think my dad is stronger than he thinks he is, and she said she will relay that information to his doctor. She suggested a face to face appointment with the oncologist with my dad and myself to review him. She didnt know how quickly that could be though, and I said i was worried that every day of delay for chemo is crucial. If they decide on a blood transfusion as well, that's even further delays.

    I've been googling delays to chemo as well, and that has worried me as it all says it can increase the chance of it not working.

    I'm so worried that these appointments will take ages to come through, and/or that my dad will list refuse more chemo. 

    I cant help thinking that there is no hope, and it breaks my heart. x

  • Hi

    I know it’s easy to say but hard to do…but avoid Google!  A lot of it is out of date and everything is down to the individual not statistics!  There are so many people on this Forum who have had negative prognosis and are still here many years later.  So don’t give up hope and try and focus on doing things to make your dad as happy as he can be!  It’s even little things.. Watching a TV programme he enjoys.. going for a short walk if the weather is nice.. making up food he manages to eat..

    I hope you get a face to face appointment soon!

    Take care

    Jac

    Life is what happens when you are making other plans!