Gastrectomy with lymph nodes, part of pancreas and spleen removed

I had this procedure, in October 2019, although I was found to be stage 3. I had 4 rounds of FLOT, before and after surgery, although my response was not great. I am doing ok, but it takes a year at least to get used to the new digestion process. I am supposed to be getting after care for at least 5 years. I think good general health, and a positive outlook really help in this situation. I have to take a low dose of penicillin daily, because of loss of spleen and I take Creon because of the pancreas reduction. 

Thanks for your response Maggie. Assume ur cancer free. So then I guess all the meds and this procedure is worth it 

Hi, I am cancer free, although my latest blood test, 3 weeks ago, has shown an elevation in CA19-9, which is a little worrying. I am due to have a scan in 3 weeks. Its really important to make sure you get regular blood tests, and mine slid somewhat with all the Covid business. There are quite a few folk in this forum who have survived the 5 years from what I can see, although my operation was extensive, as is yours. Best wishes.

Thanks for your positivity Maggie. And I hope even though ur bld levels are slightly elevated, that you will be absolutely fine on the scan. All the best!! 

Have you had the op? I’m hoping to have the same operation in July so looking forward to hearing how you find it. Staying positive definitely helps. Sending lots of healing thoughts. 

Hi Sunflower! Yes I am writing on behalf of my mom who had the surgery 3 days ago. There was pain but she is already looking better today. Let's see how the next few days and weeks pan out