Spinal Cord Ependymoma

Hi Bernto and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I don't have the same type of cancer as you but I noticed that your post hadn't had any replies yet. By responding to you it will 'bump' your post back to the top of the discussion list where it'll be more easily seen.

While you're waiting for replies you could have a look through some of the other posts in the group to see if anyone else has had similar experiences to you.

x

Thanks so much latchbrook! I look forward to connecting with others who have gone through similar things. 

Hi Bernto,

Ive just been diagnosed with a spinal Ependymoma, like you i am wheelchair dependant , ive been waiting since Dec last year when i was told it was a schwannoma, to then be told 4 months later it wasnt,

Im now just waiting results from Brain MRI and a MDT meeting .xx

Hi Kentgirl11,

So sorry to hear you are having problems with your diagnosis.  I had my surgery under Prof David Choi at the National Hospital for Neurosurgery in London. They are an amazing team and the only people who were willing to do the op for me. They saved me from losing control of my bladder and bowels which was a huge concern for me. 
I am having emergency scans on my brain tumour in the next few weeks due to headaches. Hoping to avoid surgery as it will be dangerous for my sight and can do without being blind in charge of a wheelchair!!!! 
I hope your scans go well. Please do reach out if you ever want to chat. Take care!