Macmillan Online Community
 
  • Cancer info and support
  • Online Community
  • Donate
  • Fundraise
  • Cost of living
  • Advocacy
  • Volunteering
  • Healthcare professionals
  • Shop
  • About Us
  • More
  • Cancel
  • User
  • Site
  • Search
  • User
  • Search
  • Forums
  • Blogs
  • Ask an Expert
  • News
  • Help
  • Guidelines
  • More
  • Cancel
Soft tissue sarcomas forum
  • Cancer types forums
  • More
Cancer types forums
Soft tissue sarcomas forum
Mentions
  • Forums
  • Members
  • Mentions
  • Sub-Groups
  • Tags
  • More
  • Cancel
  • New
Soft tissue sarcomas forum requires membership for participation - click to join
  • RE: No idea how to deal with nephews cancer diagnosis

    src60
    src60

    Hi AuntieL 

    Welcome to our community, I hope you find it both informative and supportive.

    My name is Steve and I am one of the community champions. My experience of cancer is via my wife who has Leiomyosarcoma.

    Something I found important as a first step…

    • 6 months ago
    • Family and friends forum
    • Family and friends - Discussion Forum
  • RE: New here

    src60
    src60

    Hi Axel 

    Welcome to our community, I hope you find it both informative and supportive.

    I am Steve, one of the community champions and my experience of cancer is via my wife who has Leiomyosarcoma. One of my focus points then in on our Soft tissue sarcomas…

    • 8 months ago
    • New to the Community forum
    • New to the Community
  • RE: suspected sarcoma

    src60
    src60

    Hi qwertyuio41678b 

    Welcome to our community, I hope you find it both informative and supportive. You are very welcome to post here as is anyone concerned about cancer.

    I am Steve one of the community champions and my experience of cancer is via my wife…

    • over 1 year ago
    • New to the Community forum
    • New to the Community
  • RE: Partners recent suspected cancer appointment

    src60
    src60

    Hi Corkoann 

    Welcome to our community, I hope you find it both informative and supportive.

    My name is Steve and I am one of the community champions and my experience of cancer is via my wife who has Leiomyosarcoma - as such I am often seen in the Soft tissue…

    • over 1 year ago
    • Emotional support forum
    • Emotional issues - Discussion Forum
  • RE: DFSP

    src60
    src60

    Hi

    Welcome to our community, I hope you find it both informative and supportive.

    I am Steve, one of the community champions and my experience of cancer is via my wife who has Leiomyosarcoma. People often meet me via our Soft tissue sarcomas forum where you…

    • over 1 year ago
    • New to the Community forum
    • New to the Community
  • RE: Dedifferentiated liposarcoma

    src60
    src60

    Hi Jmd25 

    My wife has Leiomyosarcoma so a different brand of sarcoma but also rare. She never wanted a prognosis but she was also told chemotherapy was unlikely to be effective but for her is was the only option on the table. We were very fortunate though…

    • over 1 year ago
    • Supporting someone with incurable cancer forum
    • Supporting someone with incurable cancer - Discussion Forum
  • RE: Carcinosarcoma

    src60
    src60

    Hi Brooky 

    My wife has Leiomyosarcoma, hers was incurable from the start and just getting to a diagnosis was challenging, her cancer being discovered some time after her hysterectomy because the lymph nodes did not return to normal.

    Initially the doctors…

    • over 2 years ago
    • Womb (uterus) cancer forum
    • New here, say hello
  • RE: My heart aches...

    src60
    src60

    Hi Justlilixo 

    It can be so difficult dealing with how we feel when family get a cancer diagnosis so I am really glad you found your way to our community. 

    Sarcoma is a,rare type of cancer and we have a special group here Soft tissue sarcomas forum , my wife…

    • over 2 years ago
    • Family and friends forum
    • Family and friends - Discussion Forum
  • RE: Hi

    src60
    src60

    Hi Netty43 

    Sorry to read this, for my it is my wife with Leiomyosarcoma but as I am sure you know already sarcoma is a rare form of cancer - on here we have a group Soft tissue sarcomas forum and there is a lot of information to on the sarcoma uk site

    …
    • over 2 years ago
    • Carers only forum
    • Carers Only - Discussion Forum
  • RE: Dread

    src60
    src60

    He Nella 

    You are in a really good place in terms of understanding, my wife has Leiomyosarcoma hers started in the womb and spread to her lungs but for her the only treatment option was chemotherapy.

    She never wanted a prognosis but with sarcoma being…

    • over 2 years ago
    • Carers only forum
    • Carers Only - Discussion Forum
  • RE: Bewildered

    Former Member
    Former Member

    Hi DDChops 

    Welcome to the online community and to our group. As you have already found, everyone is very friendly and supportive. We all have different cancers but we are all incurable and therefore understand each others position.

    I'm very sorry to read…

    • over 2 years ago
    • Living with incurable cancer forum - patients only
    • Chat
  • RE: Sarcoma cancer metatised to lungs

    chellesimo
    chellesimo

    Hi Richtea  sorry to hear your news. I know how scary this is for you. I also have a sarcoma which has spread  to my lungs. The most important thing I can tell you is, stop googling! When I was first diagnosed, Google told me I had 3-5 years, that was in…

    • over 2 years ago
    • Secondary lung cancer forum
    • Lung, Secondary Cancer Group - Discussion Forum
  • RE: This again?

    src60
    src60

    Hi JamesYSK 

    Sorry to read your story, as we hear now 1 in 2 people will be affected by cancer at some point in their life so unfortunately your story is much more common that we might like to think - still does not make cancer the easiest conversation…

    • over 3 years ago
    • Carers only forum
    • Carers Only - Discussion Forum
  • RE: Gist bowel/liver cancer

    src60
    src60

    Hi  

    Sorry to hear about what you have been going through, We have quite a lot of information on GIST here and you might like to come and join us in the Soft tissue sarcomas forum 

    My wife has Leiomyosarcoma and when she was first diagnosed I did not understand…

    • over 3 years ago
    • New to the Community forum
    • New to the Community
  • RE: Alveolar Soft Part Sarcoma

    src60
    src60

    Hi NZL 

    Hi I normally hang around on our Soft tissue sarcomas forum but saw your post and wanted to reach out to you. My wife has Leiomysarcoma and it is metastatic in her lung - long story - but I don't think anyone has even attempted to count numbers.…

    • over 3 years ago
    • Lung cancer forum
    • New here, say hello
>
Help us do whatever it takes, because we’ve never been needed more.
Donate
Online Community
  • Cancer groups
  • Cancer blogs
  • Ask an expert
  • Cancer news
  • Help
  • Sitemap
More from us
  • Cancer information and support
  • Cost of living
  • Online Community
  • In your area
  • Fundraise
  • Donate
  • Advocacy
  • Volunteering
  • Healthcare professionals
  • Shop
  • About us
About us
  • Contact us
  • Jobs and careers
  • What we do
  • Our organisation
  • Corporate partners
  • Press office

Whatever cancer throws your way, we’re right there with you.

We’re here to provide physical, financial and emotional support.

0808 808 00 00
Macmillan Logo
Fundraising
PIF logo
  • Sitemap
  • Terms and conditions
  • Privacy policy
  • Cookies
  • About our information
  • Accessibility

© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007