Hi,
I'm joining the Aldara group :) To my horror I have been recently diagnosed with a BCC (small nodular) on my face (nose) and I've chosen the Aldara cream hoping that it will work given the small size of the BCC (3 mm). I think it's a good non surgical option. I'm scared of surgery and of being left disfigured, so I chose Aldara as it seems to be best compared to the other non surgical options (freezing and PDT). I felt that, even if it will not work or the effect will be incomplete, it can be a good adjunctive therapy before surgery, as at least it will shrink it and activate the immune system so no abnormal cells are left behind.
I am due to start on it at the end of the week and will update the progress/or the lack of it here.
I have few questions for you guys, those who managed to complete the 6 weeks/ or undergoing treatment now:
- Is there anyone that had more positive experiences with Aldara? Is this treatment always causing horrible side effects or it can be manageable depending on the surface of skin affected ? If only a small area is treated, would the redness/scabs extend to the whole nose?
- If the area affected is the face, and you had side effects on the moderate severe spectrum (like scabs/crusts on face, not talking about the flu like symptoms), how you managed around work ( was off work necessary at times if being in a front line job ?)
- Is the original lesion completely off at the end of treatment, if it worked - with new skin underneath a scab? Or it's still there as a flattened mark? In the short - medium term, how you have found the treatment?
- How can you find for sure if the treatment worked? Is it just on clinical aspect/clearance and dermatoscopic aspect?
- Has anyone heard about OCT (Optical coherence tomography) for skin being done in UK, and if so, where? I know it's there somewhere but I cannot find more, best provider and how much it costs. I feel there should be more information about it on relevant websites like bad/pals and nhs, and it's a shame there isn't much about it (talking about PATIENT OPTIONS AND ACCESS TO TREATMENT)...This is a non invasive diagnostic tool saving your skin of biopsy /surgery. It can be extremely helpful before and after treatment, showing how deep a lesion is and if it was completely cured after.
- Has anyone heard about any other new treatments offered by NHS? On the alternative treatment side, has anyone tried any Frankincense or Tea tree essential oil with any benefit at all ?
Thank you for having me in the group and thanks in advance for any answers. Take care, speak soon.
SG X
Thanks for your advice and encouragement. I hope yours is completely gone and you will be happy you have gone through with this treatment. My dr. said the chest area reacts the most because the skin in very thin.
I am ending week 3, with still a mild reaction, but will keep on with the treatment.
I plan to keep using it too, the whole six weeks. I paid almost $100 for this medication!
Hope something happens for you. Keep us posted.
Shanta,
I'm in my fourth week of using the imiquimod. I am out of town all week and my Derm told me to email her a picture of my nose after using the imiquimod for 10 straight days. I did that today. She thought it was reacting a little more and wants me to go back to 5 days a week and finish the 6 weeks. She said to go to my Mohs appt on January 14th and he can first take a biopsy and see if I still have the basal cells and proceed from there. I still have what I would classify as a very mild reaction to the imiquimod. The first scabs I developed came off and new ones formed. However no oozing, bleeding, weeping or soreness and no systemtic reaction. It is what is it. I guess if I have to have a lot of skin removed during the Mohs is will be the dead of winter and I can hibernate inside my house. I'm just praying I don't have to have the dreaded forehead flap. I'm trying to tell myself this isn't a serious cancer and I have had several friends pass recently with serious cancers.
How are you doing...any reaction yet.?
Hi Becky,
Good luck at your next appointment, please let me know what happened. I hope and pray that the biopsy will not show any more basal cells, and that the Aldara actually worked, although the reaction was milder ( it was your personalized reaction to it)...It works for so many people but in many different ways and it would be good to know you had a positive outcome...
I have finally had a reaction with oozing...but not from the Aldara unfortunately. I have panicked and decided to jump off the Aldara boat temporarily...so I had the BCC removed via laser surgery combined with PDT (photodynamic therapy) 2 days ago. The treatment was approved by the insurance. It removed the BCC and hopefully it will work - it is replacing the need for Mohs although, if it does not work 100 % I will still have to have Mohs. The site looks like I have just had a massive reaction to Aldara, with oozing and redness...I have been told that Aldara can be used afterwards to top up as the site is healing and the final results will be assessed at a later date, after it has all completely healed...
I will update with the outcome...
Good luck again...x
Just finished my 5th week with the Aldara. I had been so smug about having no systemic reactions, but about a week ago all hell broke loose. The worst was a raging Urinary Tract Infection, sore throat, diarrhea, low grade fever and aching limbs. I don't know if any of this was related to the Aldara...my internist says no, but I've got to wonder. After a week of antibiotics I am feeling much better. I will tough out the last week on this stuff.
As for local reaction...still red and scabby but not extreme. I'm on my third round of scabs falling off and then forming again. I have no idea if this is working or not.
Would I do this again? Maybe I should wait and see if it worked before I give my answer, but right now I say no. It will be over 6 weeks of having a red scabby nose. When I had Mohs 13 years ago, I had the Mohs, 7 stitches to sew it up, stitches removed a week later and everything was pretty much back to normal. Of course this one might require more extensive reconstruction, so it's too early to compare.
January 14th is my date with the Mohs surgeon, so time will tell and I will update with the results.
I was extremely hesitant to use this medicine because of the price and because I had read horror stories about it online. But I was desperate because of unsightly warts, so I took the plunge. I made sure to apply with a magnification mirror and a q-tip. I can't stress enough how important it was to ONLY apply it exactly where the warts were. My side effects included swelling and itching around the affected area and some fatigue/aches. After using it 4 times, my warts were gone. Worth it worth it worth it. Just be careful not to put it on any healthy skin.
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