Microcystic adnexal carcinoma

FormerMember
FormerMember
  • 15 replies
  • 23 subscribers
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I have just been diagnosed with this type of cancer in my left eyebrow and am waiting for app with Moh's surgeon. Google has not been very reassuring about possible size of wound and final outcome. Would appreciate info or advice from anyone who has experience of this. Apparently it is very rare.

  • FormerMember
    FormerMember in reply to latchbrook

    I was thinking about you yesterday! I went and had an appointment with an ocular specialist and I'm now on a waiting list to have revision of my other eye to try to creat some type of symmetry before I have my eyebrows tattooed on! 

    Hope you're both well x

  • Hi

    If I'm one of the people you're referring to then I'm very well thank you.Glad to hear things are moving for you and do keep us informed about how things go.

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Nellieson

    I was pleased to hear about how thorough the medics are when treating this wierd tumor and that they take your appearance seriously afterwards. I have appt with surgeon next Tues and have a long list of questions to ask. I am hoping that I won't have to wait too long after that for surgery. When they thought I had basal cell they told me that wait would be 6 months. Hopefully I won't have to wait that long. Just want to get started with treatment. 

    Getting eyebrows tattooed still makes me smile. Can you choose colour?  I'm going quite grey so that could be interesting. 

    Please keep me updated and I will post info on my appt next week.

    Take care

    Bio

  • FormerMember
    FormerMember in reply to FormerMember

    It's so great you're being seen next week. However long you have to wait, you've just got to go through the motions. You'll worry and catastrophise (spelling?!) but apparently, thats all part of the fun!

    Soooo as far as the colour goes, that a yes, they basically match the colour of what's left and then whack it on! I've been drawing in my eyebrow for a while now so that I can take a picture of it exactly how I want it as the last thing I need (I'm a teacher) is to go into school in front of a load of 15 year old boys looking like Ronald MacDonald Joy

    If I could figure out how to add a picture, I'd show you!! If I ever manage it, I'll pop one on Kissing heart

    Looking forward to hearing about your appointment next week,

    Alex

    x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Alex

    Had appt on Tues. Didn't have a good start as I went to wrong hospital. Made assumption from comments made by dermatologist who kept mentioning main hospital in neighbouring trust. I hadn't read appt letter properly. Just date and time. Luckily went with my daughter who sat naved us to proper place, still in time for appt.

    Consultant was excellent and was very low key about it all. They will schedule me for Mohs surgery in next 2-3 weeks. They op on all women one day and all men another. Says there is about 90 mins while path results are completed and that I can have female visitors during that time. The hospital is not far from home but in an area that only a couple of friends are familiar with. Hope to be able to read to pass the time.

    It seems that there will be competition to perform op. There are 4 surgeons who do them and none have seen a Microcystic Adnexal Carcinoma. She said that she was hoping go get to do it, but if not, then my slides will be well examined as everyone wants to have a look. 

    I am retired in my early 70s so don't have to worry so much about my appearance for work but don't want to frighten the grandchildren. Will probably hang about at home and in the garden while I heal. Friends can do any errands and my daughter and son don't live far away, although both they and their spouses work. I do the school run twice a week to pick up but will pass that on to other grandparents so that I don't scare any kids in playground.

    I am ready for it to be happening now.

    This will be your crazy time in school. My son in law is a teacher and he is marking like mad. 

    Hope you are getting ready to enjoy your break.

    Will let you know how op goes.

    Brendaxx