Hi, I've yet to see anyone about my diagnosis, I found out through my nhs app that I have scc lower lip.
I had an incisions biopsy 22nd March/ a lot of what was left behind dried up and fell off, however it is starting to grow back just weeks later.
I'm in my mid 30s and petrified as I am now learning after a bit of reading that I've had AK for probably the last 5 years if not longer, I first went to my gp last August 2022 for a small waxy bump on my lip that somewhat resembled a blister back then.....as well as many other oral complaints such as persistent recurring sore throat/ difficulty & pain swallowing. Both of which I very much still have.
I was completely fobbed off, went back in November 2022, referred to ENT and for ct scan.
Both performed in December, both came back satisfactory with moderate inflammation of no obvious cause, they put down to acid reflux, and some small gallstones found, put on omeprazole which helped minimally at first but now no effect. Diet changed which again only helped minimally.
Suffered with terrible sinus and jaw/tooth pain in January/February . Dentist immediately said she was referring me to oral & maxillofacial for biopsy of lower lip lesion and stated my gums looked suspicious too.
Not seen by oral & maxio until 17th March, consultant said there were signs of pre-cancer but he was confident the lesion would be benign.
22nd March had the incisions biopsy, again consultant mentioned signs of pre- cancer but with no obvious concern.
Fast forward to last Monday, and I casually go on my nhs app to re-order omeprazole/gaviscon and find details of biopsy result confirming SCC of lower lip.... No report attached just a statement confirming diagnosis, no staging/margin/type details.
I spent the whole week trying to contact a clinician with no joy 
Best I got was confirmation that it was correct. Gp told me to contact hospital. Hospital has not responded after numerous messages.
Originally didn't have a f-up until 30th May which I find ridiculous after a positive biopsy. 10 weeks post biopsy that would be ???
Have managed to have this brought forward to 9th May 7weeks post biopsy still a long time in my opinion but perhaps normal, I'm new to cancer but always thought pathway was quick???
Anyhow guess I'm just looking for advice from anyone with same type or location of the cancer, and positive news despite lesion being there for so long before finally being biopsied.
Thanks all
I'm considering going private but will wait until 9th to give nhs chance to explain but irregardless I will be making a complaint to pals, just feel I've been treated appalingly.
I'm bemused by the fact nobody has contacted me, I'm trying to remain positive but honestly struggling as it's just been such a difficult process up until this point... I honestly never thought I'd have to fight so hard to be heard and even now with a positive biopsy I just feel like I've disappeared off of their radar 
I'm hoping because the lesion was small no more than 2cm they've got most of it during biopsy, but they definitely left some behind and despite most of that flaking off, there is still some remnants there and I can see and feel it starting to regrow. With it being scc not bcc like you say I'd of thought they'd want to perform 2nd procedure quickly.
I know the nhs is struggling as I work there myself (ironically next door to the department I'm under) but blimey it's all a bit of a headache.
Thank you for your reply, I hope you are now fit & well? And free of the bccs?? Xx
Hugs and warm wishes to you too.
