Face Skin Cancer...or not?

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Hello

I am in for surgery this week after what seems forever.  It's not, and I know there are others with bigger issues.

I woke from a Covid haze in April and found a small pimple with a dark centre just in front of my ear.  It doubled in size each week.  I sent photos to GP, (they are still not seeing patients in person).  

The first GP prescribed a fungicide cream.  I applied for ten days as instructed.  I think I was just moisturising it as it continued to grow.

So unpleasant and useless was this thing,  I nicknamed it 'Stiltskin'

Keen to get a human to look at my new fixture in real time, I trotted off to my friendly Pharmacist who looked on in horror and said 'Go back to GP with all haste.'  

I walked up to the GP Receptionist and pulled back my hair to show her and she physically re-coiled.  As instructed, I uploaded 'Stiltskin's Photobook' to the practice website.

Two days later, GP phoned to tell me I had what appeared to be a Basal Cell Carcinoma and had been referred and put onto the two week cancer care pathway.

Four weeks later, I was seen by a Dermatology Consultant who said it was a Squamous Cell Carcinoma and said he was passing me onto a Maxillo Facial Consultant because of the location of the beastie.  There is a lymph gland (pre-auricular) and the Parotid Gland underneath.  For comfort, he told me I would be having a one-sided face-lift.


And then nothing.  I chased for information via the Consulatant's secretary and the Patient Advice and Liaison Service

All this time, I continued working in a customer facing environment as a civil servant.  That has been my biggest stressor.  I have very inexperienced line management and, clearly, being exposed to guidance on equality, diversity, and well-being, does not necessarily mean it is a lived experience.  And do not get me started on mental health first aiders!

'Stiltskin' continued to change.     I accidentally knocked it and the middle of the growth fell out so a dressing was necessary and all day, every day people were asking what was wrong with my face. Constantly explaining was exhausting.    I took time off work due to anxiety issues.

To expedite an end, I decided to make enquiries privately and saw a Consultant at the end of June, thinking that at least the thing would be dealt with quickly and I could put it all on the credit card.  This Consultant thought it could be a Seborrheic keratoses, or a Squamous cell carcinoma, or a Basal cell carcinoma.  She had no space in her diary for the following week but would get her Secretary to contact me. Nothing from her.  Two weeks later an appointment arrived from the NHS.  

This Thursday is the day.  

'Stiltskin' has degraded and dropped off on the surface but there is still an area that is raised and scaly.  There is a new patch above the site.  I have Tinnitus in that ear but not sure if that is an after-gift from Covid rather than this growth.

From start to that date is nearly 16 weeks.  

I do not write this as a moan but as an account of how I have felt and feel.

The differing diagnoses, the pressures from line management, the unrealistic and unproven time-frames have all added to my current state that sees me medicated on Sertraline.

I am over 60.  I did not grow up in the age of social media.  I am of the 'don't discuss your dirty laundry in public' and 'keep calm and carry on' brigade.  I work in a 'talking therapy' environment.   Social mores insist I share constantly to friends, family, customers, line management etc.  I am not acculturated to do that but I can write to people I have never met who may understand my ramblings.

My age in the workplace has worked against me during this period.

To all who ready this, I wish you health, peace and, most importantly to me, quiet. xxx

  • Hi Puckettyboo Was just thinking of you and Simple Abundance wondering how things were.  It is so strange I could just burst into tears for no reason and I know I should be elated but Im just worried it will happen again.  I think probably all that has happened in the last 6 months is catching up with me as I suppose I have just got on with it.  It annoys me so much that people think it is a simple skin cancer. Some are. My husbands friend was asking how we were the other day and Roger told him I had been not too good and told him.  He immediately showed me his arm saying I had one of those 3 stitches and that was it.  Roger said think Mary's was a bit worse than that so he didn't say anymore.  Some people just do have a simple one, but think ours were a bit different don't you.  Do you work, if so are you coping ok.  I am 73 so retired so didn't matter that I couldn't go out.  My friend is on holiday until Monday so hospital will do her operation when she gets back so perhaps a letter will be waiting for her when she gets back.  Thank you for your concern, nice to have friends with the same feelings. xx

  • Gosh Simple Abudance what a mess it all seems.  Why don't you go back to your private consultant. I had the fungal creme first from my gp and I then went private. Dermatologist first who disgnosed there and then basal cell carcinoma on both areas.  Referred me to plastic surgeon and he felt a better job would be done as it was my face, saw him and he immediately got on with the operations, nose one first and then the nasty one near my eye.  I feel so sorry for you as you have seen so many people and still not got a proper diagnosis and plan of action.  xx

  • Hi simple abundance

    I really never cease to be shocked at how these things are treated or not treated.

    A max fax consultant with shaky hands? 

    Absolutely shocking and obviously doesn't inspire confidence.

    The only obvious answer really, is to do a biopsy especially with so many opinions.

    I know you shouldn't have to suggest it yourself but it may get them to do a biopsy if you suggest it. 

  • Hopefully things will get easier for you in time.

    I don't think it helps when they tell you were at a higher chance of getting more. We can spend  ages staring at our skin looking for anything suspicion.

    Basal cell cancer on the arm is a lot different to on the face. It doesn't usually involve reconstructions and skin grafts and isn't as visible.

    I'm constantly annoyed at people's blase reaction to dkin cancers. I think they'd feel a lot different if they had to have facial surgery.

    I gave up work two years ago as I had to become my husband's carer as he has very poor health. I really miss it. I come from a nursing background and have worked in theatre. I'd retire this year anyway.

    I have to say my work background especially theatre has not helped at all

  • Hiya again!

    Has PCS got a national helpline?

    If you are off sick, keep in touch is a supportive measure so I’d try to cooperate, how often are you having the KIT?

    If you are off sick, you can also say that you want to return when you are physically AND emotionally well.

    i am not able to comment if the line manager’s action amounts to harassment but you are correct that bullying someone who has a protected characteristic could amount to harassment which is a form of discrimination. In contract, bullying not based on a protected characteristic would not be harassment. It does sound as if they are inexperienced.

    I am sorry you have felt so unwell, it is understandable.

    chamomile.

  • I have been trying to see the dermatologist since February, the two new marks on my face which I think are new bccs they have dismissed as sun damage after me sending in two lots of photos, seeing as I have already had four removed from my face already, I think I am right to be concerned, I will obviously have to pay for a private appointment, if he then says they are bccs I was thinking of then asking my doctor to have them removed on the nhs. Do you mind me asking if I am not successful, how much you paid privately to have them removed, just in case I have to be prepared. The longer I am waiting the bigger they are getting. I laugh when I see the advert on the tv, if you see anything suspicious to contact your GP.

  • Hi Hutchm I have just had 2 bcc's removed from my face one skin flap the other skin graft. I am not sure what they cost as in Bupa and don't see the bill, but think the first one was £2,000 which included a consultation fee and histology report.  These were done by plastic surgeon as dematologis wouldn't touch them as too complicated for him. You have had a lot haven't you, but the Consultant told me I would probably get more, which has made me feel very down.  Did you have skin grafts with all of them. I had one near my nostril and another nasty one near my eye. I can't believe they have just dismissed them.  I am fed up of them saying sun damage as I am so very careful use sun cream all the time. What do your latest ones look like.  So sorry to hear about your bowel cancer too that is so awful for you.  You have waited a long time for your bcc's havent you.  Feel free to ask anything as this gtroup has been my life line as people just dismiss skin cancers as not being anything to worry about, but they are xx

  • I can't tell you how much it would cost as mine were looked after by the nhs.

    This is after being misdiagnosed.

    After having four of them you will definitely be able to recognise any new ones and your doctors should also understand that you're at a higher risk of getting more and be taking what they call sun damage seriously.

    Have you made them aware that they're growing?

  • They have had two lots of photos and don’t seem concerned, I am going wait til sept beacause my sister is visiting from Australia and I’ve got a wedding on the 1st sept, I will then get a private appointment with the same doctor I would see on the NHS, and ask him to check, if he thinks they are bccs then I will ask my doctor to refer me on the nhs. If there is a long waiting list I will think about going private.

  • My latest ones are two red marks one just above the previous site on my nose, and the other one on my cheek. When I had my first two I had them done in the local hospital and the results were not good, I then saw two people who had had similar procedures in Cardiff with MOHs surgery and the results were so much better, so the next two I asked to be referred to Cardiff, I don’t think they were pleased, the one on the side of my nose they did a pedicle on my cheek, and I had to go back three times to have the dressing changed, and considering my nose was already damaged they did a good job. The one on my forehead, I’ve just got quite a long scar in the middle of my forehead, thank god I am not young I would have been very distressed by it all, saying that I find the whole thing from begining to end upsetting and frightening, being awake while they are cutting them out, for the last two I was in the chair for 5 hours, so I’m not looking forward to starting all over again.