Wanted to say hello

Hello Worrysomuch 

A warm welcome to the group, although I am so sorry to find you joining us.

It sounds like your husband has a decent team looking after him and I hope next weeks oncology appointment brings you some answers as to future treatments. it's a good idea to prepare a list of questions for the meeting and here's some pointers to start your list off:

Questions for my team.

There is another group you may wish to join on the Community and here's the link you need:

Supporting someone with incurable cancer forum 

Feel free to ask any questions - you will get honest answers. Some of us have a journey profile which you can read by clicking on our names or avatars.

Remember our Support Line on 0808 808 00 00 (8am to 8pm 7 days a week) is there for both of you.

Best wishes - Brian.

Thank you Brian thats so helpful 

and Hello Worrysomuch 

As Brian says - welcome, and yes please do check out our profiles..

These early stages are very very trying, for all concerned and it is important that you look after each other.

You say hubby is fit (great!) - I would recommend staying as fit as possible, and even upping the exercise level.  HT makes you fatigued - and the best way to overcome it is to exercise.

Once you have had that Oncology meeting and hopefully a treatment plan things will get clearer - you will have a focus.

Do come back and let us know how things go?

Best wishes

Thank you KrisPy we will take yiyr advice re keeping fit and yes i wil update you

Hi Worrysomuch , I started this journey 9 years ago with PSA 74, Gleason 9 and T3bN1M0 so understand your concerns.  Just deal with things as they occur.  Try not to worry about what might happen, because 1. It might not happen & 2. Worrying won’t help.  
We can help at every stage, so just ask.  You can read my journey by clicking on my name or avatar.

I too have Stage 4, and at the beginning was beside myself with worry. I realized after a very short time that’s there’s no point in worrying, you just have to encourage your husband to do what others have said on here , keep active/fit, eat well and remain positive. The medication and treatment nowadays gives us all hope that we can still live a normal life for many, many years to come. 

best wishes - Gra