Hello

Hi Zucko 

Welcome!

I like the list you have posted, very positive. 

Looks/sounds like you are in a good place, which is great to hear! And you have been treated in good time by the sounds.

If you fill in your profile you can keep us updated as we would all love to hear that things are going well for you.  You can also check out our stories by clicking on name or roundel…

The meet up idea seems to be a great idea - I have found that it is good to talk, and as you say so many individual stories…

Welcome to the best resource you can find and use when you want it.

The people here are longing to hear your positive thoughts and deeds and wish you every success in your research and choices.

You are right to avoid some internet “advice” and keep your questions for the professionals around you on you path through this prostate story of yours. Every story is different but the experienced amongst us will alway help you understand their situation and what resources they have that might help.

But away from the science and the clinical stuff is the daily grind of how you face up to the mental challenges this delightful situation has dumped you in. At least you sound intelligent and positive and already finding the right tools for your survival but we fellow sufferers and assistant sufferers are here with tons of help as and when you need it.

You have brightened my day; i hope to brighten yours in the future.

Take care.

Hi Zucko This is so helpful. 
There was a tread I was in a few weeks ago and I was mentioning HIFU as an option, but sadly there’s not a lot of feedback from men that have had it on this forum. 
I’m so glad you are here and able to share your knowledge and experience. I also believed it was a private option, so to hear that you had it with the NHS is excellent news. 
Definitely copy and paste your story into your profile as it will be read there as well. 
L

Hi BW

Happy to share my journey,  when looking at options at the start of my journey we came across HIFU but was under the impression it would be a private option

So when it was offered to me, it was a good day!

But the interesting thing is that it was never openly offered to me by my Urology consultant,  he was more keen to operate on me and remove my prostate, but because I mentioned it he then referred me to Southampton and this is the pathway I opted for

Every man's journey will be personally chosen 

But for me it seemed that HIFU was the way forward as side effects are much reduced,  if it turns out to be unsuccessful or my cancer returns I still have the original treatments available for me or maybe have HIFU again?

I have now put info on my profile, 

Have you had HIFU?

All the best

Zucko

Hi - I was diagnosed with PC in 2024. A PSA test of 7 and Gleason 7. The MRI indicated a small tumour still contained within the sack.  I met oncologists and surgeons, who all said I should do something sooner rather than a wait and see approach. I chose surgery, to be quite honest I just wanted it gone. The post op incontinence took a couple of months to resolve with pelvic floor exercises, I have regular 6 monthly PSA tests and all so far show it at an undetectable level. Everyone is different but I just wanted it gone. 

Hi Zucko 

I am a wife, so no treatment for me, but I am here on this forum for information mainly, but also it’s a community that I find holds me steady. From the very first high PSA reading of my husband’s I have been 100% focused on treatments and what’s available and where for him.  I am like my husbands PA, I report back anything new I find, gather information and ask probably way too many questions at consultant meetings. Even though HIFU is not a treatment that he will have as he’s at a different stage, it still interests me. 
L

Hi L

I'm now learning to read profiles before replying

I only joined a couple of days ago, so still finding my feet with this forum

I truly believe there should be a wifes/partners forum as well, as I don't know where I would be without the support of my wife through my journey 

And yes don't worry about asking  too many questions!  Information is key to help you move forward

Wishing you all the best

Zucko