new here

  • 2 replies
  • 188 subscribers
  • 334 views

Hi, new to this site. L was diagnosed with prostate cancer 6 year ago. 

I had radiotherapy and 2 years of prostap injections.I had the side effects which i coped with(as good as i could). when the side effects stopped i  thought great. As there was a big back log of appointments just after covid. i did not get any more contact from hospital so all my tests were done through my gp. Not the best as i never get to see the same doctor. 

Any way, after about a year from my treatment stopping the fatigue came back and got worse. and i still get it but its coming in waves, once every month or two and lasting a week or two.

My work were great about it and as i was ready to retire they gave me the last year off as sick pay. Im now retired and loving it but this fatigue is getting me down. spending days at a time in bed.I had a holidy in turkey with my wife and spent 7 days in bed sleeping. 

So i have a question i thought i would ask on here. Has anyone else had this problem as long as this? 

Thanks

  • Hello  

    A belated warm welcome to the group, although I am so sorry to find you joining us. 

    I left your post to see if anyone had the same or similar symptoms as yourself but as it was dropping down the page I thought I would reply and it will be "bumped up" to the top and I hope seen and replied to by others.

    I have had fatigue bur not long lasting like your's and not after ceasing Hormone Therapy.

    My personal thought is that this could well be something else and you need to chat to your GP and possibly a sleep specialist as this looks like it's here to stay without some investigation.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • thank you brian.

    thats my problem, i have had all the tests and all coming back ok.

    The symptoms are the exact same as when i was getting the prostap. I am waiting on hospital getting back with appointment.

    cheers