New here and looking to connect

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Hi everyone 

I’m Simon and one week on from a robotic radical prostatectomy operation.

Apart from the horrible catheter, physically I feel ok ish, but devastated emotionally, I cry when discussing anything and with everyone, is this a normal position to be in?
I had a discussion with the psychologist before the op, where again I was emotional but regarding specific things, not making it through the op, pain, etc.

im aware of what’s ahead of me regarding recovery, time, incontinence, ED etc but can’t control my emotions regardless how much I talk about them

Has anyone else gone through / suffering the same thing?

  • Yes indeed, crying is a natural process that I’ve struggled with a lot in the last year or so. It’s not that I want to control it, more that I can’t see it coming and that makes me feel worse. However I have become an emotional guy and admitting that has helped me get over myself.

    I’ve been helped by talking therapies and to date I’ve had two different therapists who have made a big difference in me.

    The Prostate pathway is enormously draining and my emotions are skin deep at the best of times. I also seem to go back to the emotional me after a bit of bad news.

    I don’t suppose that’s much help except that you’re not alone.

  • Hello again Simon ( 

    I think we can all get emotional - we are receiving news that can and will affect our life and how we live it. We also know that we face life changing medication and surgery - so yes why not show your emotions, and there's nothing to be ashamed about, it's happening to you and your body. 

    I can cry for England however I am on Hormone Therapy and this is one of the known side effects - I have even broken into tears in the pub when I have been very happy!!

    I would encourage you to give our Support Line a call on 0808 808 00 00 (8am to 8pm 7 days a week). they are a cracking set of people who can give you plenty of help to understand your emotions. Another option is to call into a "Maggie's" centre - these are drop in centres for people with cancer and they can give you one to one, face to face help - link here - "Maggie's".

    I hope this helps - you are not alone.

    Best wishes - Brian.

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  • Hi Simon

    Yes I understand what you are saying but one way to look at it is , have you been cured.

    You didn't say if tumour contained in the gland but as u had surgery I assume that it was.

    Also hopefully lowish Gleeson and even. PSA.

    All this would help u towards having a cured outcome .

    So give it time, it does get better and fingers crossed  that this has sorted it

    Best wishes 

    Steve 

  • Thanks for your reply, it is comforting to know that I’m not the only one feeling like I do. I know from the messages received that I’m not alone and I thank you for taking the time to reply to me.

    I hope that you too have the support that you need and 

  •    Hi, I was diagnosed on 2nd October and am still going through appointments to discuss options. I have been extremely emotional. I cry when I think about it, when I worry about my family, and when I tell anyone. I cry watching heartwarming films on TV and even when my wife made me my favourite meal.  It feels strange but everyone tells me its normal and I think I feel better after as it releases some stress. Today was the first time I told a friend and didnt cry, so Im slowly learning to adapt. I couldnt bring myself to say the word at first but communicating with others on here has definitely helped.

  • Thanks for reaching out, it really does make a difference to me to know that there’s others going through and experiencing the same things.

    Regarding options, each and every case is different but if I can share any information with you regarding the options that I had and the decision I made and how it’s been 1 week in, please let me know and I’ll gladly do so

  • Hi Simon,

    Welcome to the Forum. I too went for the Radical Prostatectomy and am now 18 months post operation. 

    It's a hell of scary experience and I think we are all traumatised by what we go through to a certain extent. All though not emotional during the experience, I seem to be getting more emotional the farther I get away from the experience. I think going through the experience I was so focussed on getting through my next appointment or test that I didn't give myself time or the slack to get over it. I look back and say to my self, did I really go through all that?

    I think give yourself the time to acknowledge what you have been and are going through. 

    All the best,

    PSticks.