Another new diagnosis

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Hello all. Firstly I have appreciated reading this forum and the thoughtful posts here and it's really helping me come to terms with my new diagnosis.

I was diagnosed with locally advanced prostate cancer on Monday. I'd been to see my GP in May after a best friend messaged me (and others) to say he'd been tested positive for prostate cancer after Sir Chris Hoy's publicity for his. So booked my GP and had the blood test. My PSA was 30.8. An MRI and biopsy show it to be a locally advanced cancer. It was a PIRADS 5 and 7 (4+3) on the Gleason Scale. The cancer has broken out of the prostate and has reached the seminary vesicles.  Stage T3b. There is no sign of it on my lymph nodes 

My symptoms were probably somewhat masked by those I have with my MS (I was diagnosed when I was 24. I'm 60 now) so I didn't really think much of it. I've long had an urgent need to pee. I'm very fortunate that my MS is pretty mild and has followed the more benign path. 

So it's bicalutamide for a month and a three month implant July 6th. Radiotherapy will start probably end of October. Monday to Friday for four weeks at Mt Vernon. 

The cancer diagnosis and treatment to follow has me very overwhelmed. I'm very worried about the side effects, particularly the mood swings and fatigue. I'm a pretty emotional chap at the best of times and fatigue is my main thing with the MS. So I'm going to get a double dose of this and cry a lot!

So I am trying to focus on the positives. Firstly and most importantly to know that this is treatable. Secondly that I can focus on keeping as fit as I can through diet and exercise. Thirdly that I have the support of a loving husband. Fourthly, I'm fortunate to be retired.  But even with these I am fearful. It comes over in waves. And that's before the true side effects have kicked in. It's a journey alright, but one I have to take. 

Thanks for listening and it remains for me to wish everyone here going through this all the best. 

Oh and if you can offer me words of encouragement that would be amazing. 

Phil 

  • Hi Dellara

    Sorry to hear although looks like they caught it in time, even though in vesicles still potentially curable.

    Just want to say that I had my treatment in 2017 at Mount Vernon, excellent.

    Radiotherapy is relatively easy and side effects go away a couple of weeks after treatment is over.

    Hormone therapy affects people differently but again side effects should go away when treatment finished 

    Try and keep to a good diet, I cut back on sugar red meat alcohol and try and exercise.

    Good luck

    Steve 

  • Being emotional is par for the course and I am the same. Not a day passes without something effecting me inside or outside my changed world.

    You will take a time before you feel all the emotions of what your going through, it’s a very complex and exhausting time at the start and the positives hide themselves away sometimes which means you have to look for them and keep them in mind.

    You are not alone and you must remember that. This forum has helped me and will always help you so ask away whenever you need experienced advice or comfort. We are here.

    It helps us to help others going through this couples disease and make no mistake, a good attitude will help you enormously.

    Good luck 

    1. Hi Delarra, 
      
      im on a similar route to u.My Gleason is higher 5+4  but my PSA  10.4. Also locally advanced. I'm on bicalutamide  and just had my first hormone jab yesterday with plan of EBRT in October if all goes to plan at the Royal Free hospital.
    • I have Charcot-Marie-Tooth disease which  is an inherited neurological disorder , though mild compared to many others . Fatigue has always been an issue for me  so I can relate to your fears, im told we all react differently  to treatment regarding  side effects so im trying not to worry about it till it happens.Hopefully it won't .
    • As you say , its a journey we           now have to take.Nothing wrong with having a good cry when needed . Something it took me years to learn .like you im trying to eat well and keep as fit as possible .
    • Keep positive matey ,keep talking when u need it , they are a great bunch of warriors here and now we are warriors too.
    • ATB.
    • Mark.
  • Thank you Mark. All the best to you and see you around. 

    Phil 

  • Hello Phil ( 

    Sorry to find you joining us - but reading your post you have been "ghosting us" for a while so you know what we are about. As you already have mild MS you know what life can be like with an illness - Prostate Cancer is very "treatable" and we all have a different journey.

    I have a positive attitude - it's got me through 3 years HT/RT - life goes on - side effects, iv'e had the lot and some not listed - you keep fit, cry when you want to (i do it in public - it shows you have emotions) get an issue, speak to us. That positive attitude is half the battle - when you have a bad week - tell us - we will be there for you (I had 2 really bad weeks) Remember you husband is part of the journey too and if he needs any help - we are here for him too.

    You can do this - it's not easy but - we are here for you any questions, however trivial ask them - we will have an answer. I am 3.5 years into my journey - I have had issues but if you click on my name or avatar you can see where I have been.

    Oh and if you can offer me words of encouragement that would be amazing. 

    It's "our" club and you have joined us - it's our battle - we are with you. You your husband and this Community can get you through this.

    There you go - anything you need - just ask.

    Best wishes - Brian.

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  • Thanks so much for your words Brian. ATB to you. 

    Phil 

  • Hello  Wave tone1

    As you have already seen, the support on here is massive! This forum has really got me and my partner through some of our darkest days. 

    My story is all on my profile, my partner has just been diagnosed with advanced metastatic PC with....complete shock and I do believe that although we are both full of positivity, maybe the new normal hasn't quite sunk in yet Thinking

    My partner is currently on HT (degarelix), only started 3 weeks ago, experiencing hot flushes galore but so far no other side effects and the treatment has completely taken away his bone painRaised hands tone1

    We are still in the "planning" stage of incorporating a healthier diet and lifestyle, we will get there when all this eventually concretes itself into our lives, we gotta live life to the full and if that means having the odd naughty day then so be it. 

    Don't put too much pressure on yourself to take all this in and deal with it straight away, do whatever you need to do, this is a couples disease and together you are both strongerMuscle tone1

    Use and abuse this forum, any questions, rants, good times, not so good times, get it all out and TALK! 

    All the very best Hearts️

  • Thank you Polly. I wish you and you're partner all the very best too. 

    Phil 

  • Good morning  

    glad to hear you OH bone pain is away. This is positive and what a lovely message to  . Yes we prop each other up good , bad or just having a bit of fun . This group are amazing . 

    best wishes to all 

    Liz & OH xx