I received my diagnosis a month ago of Prostrate Cancer - Gleason 4:3 but with a T3a report. As a result things have been moving swiftly. I have met my surgeon who ordered a bone scan that was done five days later and I was called to tell of my appointment for a Pre-Op medical assessment the following day. I am now awaiting the date for surgery which will be a radical prostratectomy. It all feels rather surreal. I have no symptoms. This process was started by my GP who noticed I hadn't had a full bloods test for some time and arranged this then called to say my PSA level was high. It had more than doubled in less than 2 years, I had a PSA test at the rugby club before arranged by the Prostrate Cancer UK. I was called for an examination and discussion, referred for an MRI that found an anomoly which generated an appointment to got to Urology for a biopsy which provided the evidence for the diagnosis.
I'm 66 years old, recently married, fit, healthy, cycling regularly. I have been a triathlete and competed at National Championships, a rugby player and coach, completed many marathons and many other feats. This all feels out of step. It's beyond existensial. I am coping, I think, its hard to tell with so much new territory, thoughts, and fears. Its harder for others my wife in particular but children friends family are all affected.
One benefit is that I managed to raise over £700 for Macmillan by riding the Etape Loch Ness a couple of weeks ago. 66 miles around Loch Ness with some awesome climbs up into the highlands. I was going to do it as a challenge after surgery on my ankle to cure arthritis but a little before the event I received all this and dedicated my ride to Macmillan.
How do others cope?
Hi Sardonnick -it is about time I weighed in on this case. I am not a consultant or doctor and, of course, I may be biased due to the fact I pursued the radiotherapy route. However, I feel I need to contradict some of the one sided assumptions from your surgeon:
You said the following and I have put my contradictions in brackets:
”In answer to your question we had a long discussion with the Urologist who gave the diagnosis about the risks with other pathways. The concern is that the worst and most aggressive cancer is near the edge of the prostrate (wrong - prostate) and may break out and spread. (Wrong - Even more reason to have EBRT) Urgency was recommended. (Wrong - Bicalutamide is instant) Radiotherapy with the preparatory hormone treatments would take months (wrong - it puts it to sleep immediately) and given the nature of the risk and its location it could spread and complicate. (Wrong - even more reason for EBRT and HT) Brachytherapy is a long term treatment (wrong - it’s done in a day) suitable for slow to moderate cancer (wrong - it will kill everything in the gland) which would not be appropriate for my diagnosis (wrong - it’s the better option) . The recent bone scan shows that it hasn't spread to any degree. If it had radio and possibly chemotherapy would be the new pathway. (Wrong - if they’re going for surgery, then chemotherapy would not be done on the radiotherapy pathway) Surgery is now booked for early June.”
I wonder if you have felt pressured into early surgery. Doesn’t sound like you have spoken to an oncologist, which is contrary to NHS guidelines. Of course, we are all individual cases and it may be that your case specifically excludes radiotherapy (but that would be highly unusual). It’s not too late (and entirely reasonable given the weight of this decision) to request a consultation with an oncologist.
AW
Sardonnick An excellent reply from AW. It doesn’t get any better than that. Also the reply from Dobbie Florence, Always Hope, Millibob and others. My prayers are with you for you to make the right choice
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