Recently diagnosed and so confused on what to do next!

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Hello I was recently diagnosed with prostate cancer. 
2 lesions 1 Gleason 6 3&3 and one Gleason 7 3&4 16 cores taken 4 came back cancerous. Confined to prostate. 
I’m not sure in which direction to go next. I’ve been offered two routes active surveillance or surgery. They don’t want to go down radiotherapy route as I’m only 43. 
Im really looking for some advice, can any one advise on being on active surveillance (having cancer and not doing anything scares the living daylights out of me) and also can anyone give me advice on the surgery route. I’m leaning towards surgery but looking to hold off until later in the year. I’ve got a young family and I don’t want to upset the things we have planned but don’t want to to risk the cancer spreading. So confused and scared at the same time. 
thanks in advance for any advice. 
Gary 

  • Gary, fingers crossed Fingers crossed for when you see the surgeon today.

    We are all here for you.

    Steve (SteveCam)

  • Ok, so not too bad.

    Just to let u know when I was diagnosed in 2013 my largest tumour was 3mm and grew to 13mm over 4 years on active surveillance before starting treatment 

    So the main thing is yearly MRI to see any tumour growth and also if nearing capsule edge

    Steve 

  • Good Morning Gary

    Im meeting a consultant surgeon today and got plenty to ask. 

    I hope your meeting goes well - do please let us know how you get on. Do remember time is on your side.

    Best wishes - Brian

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  • Hello folks thanks a lot for all your replies and support. 
    I’ve had quite a long meeting with consultant surgeon and CNS.

    They’ve decided that the best thing for me to do is have surgery as they don’t like to leave cancer in 43yr olds if possible. I’ve decided to wait till August to have the surgery as they both agreed it’s a very slow grower and shouldn’t cause any issues between now and then. I was offered surgery at the end of March but unfortunately my father also has prostate cancer and is about to undergo his radiotherapy in March and I’m his only family so needs my help. I’ve also got a 7 year old that has no idea what’s going on so it’ll give me a bit of time to work something out with him. 


    I really hope that putting it off till august won’t have any effect but I’m trying to juggle with what’s best for both me and my family. Also the financial side as I’m self employed so need to try and get some savings behind me as plan to take as long as needed to fully recover. 
    thanks again Gary 

  • Hello Gary ( 

    Well done in taking the plunge and also for keeping us informed. I wish you well with your surgery when you get round to it in August. Here's a link to some "free stuff"

    Surgery Support Pack

    I appreciate how hard it is talking to a child about daddy's cancer so here's a link to our publication:

    Talking to Children About Cancer

    Being Self Employed and unable to work is hard (I work for myself) and the only benefit that COULD be available whilst you are unable to work is Universal Credit.

    If I can do anything else for you please do let me know.

    Best wishes - Brian

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Good that you've come to a decision Gary, am sure all will go well

    Steve 

  • Gary, you will feel better having made the decision and I am sure it is the correct one for you.

    I told all my grandkids (4-8 years old) that I had cancer in a very nonchalant way and they didn’t bat an eyelid.  They react to your emotion so I just talk to them as though it is an everyday occurrence. Have a great summer and come back here if you have any questions or  just want to chat.  David

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • Gary, glad you are going to have the surgery 

    They’ve decided that the best thing for me to do is have surgery as they don’t like to leave cancer in 43yr olds if possible.

    I wouldn't think waiting until August won't have much effect, but I'm not a Doctor.

    You have a lot on your plate.  Please let us know how things go, there's always someone who will answer your posts.

    Take Care

    Steve (SteveCam)

  • Hi, I am 11 months post radical prostatectomy and bi lateral lymph node removal. Click on my photo  to read my diary on my profile.

    all the best 

    Psticks