Fishing

Hello  Bric 

I have been on hormone Therapy for 3 years - I have had erectile dysfunction, hot flushes, itchy skin, fatigue, brain fog weight gain, loss of mass in my muscles, loss of body hair, I have grown a pair of moobs and probably others I haven't listed.

The thing is I have lived through all of it and as I am on a "curative pathway" to me it's all been worth while. Only a minor irritation.

Best wishes - Brian.

Hi Bric 

I'm on my second year of HT and am suffering with most of the side effects mentioned by Millibob , however my PSA dropped from 42 to undetectable (within 9 months) . People react differently to HT and some people on the forum had far fewer side effects. For me it's not an easy treatment, but it's very effective.

Hope this helps 

G

Bric,

As with Brian (and most others), I had all apart from loss of body hair.  I was only on the hormones for 18 months.  Things do calm down, I had acupuncture for the hot flushes, once I had my last hormone injection.  This did work for me, downgrading them into warm flushes.

As L1m said:

L1m said:

For me it's not an easy treatment, but it's very effective.

Not everyone suffers from side effects 

Thanks for that information newly diagnosed worried about everything that’s happening with me need to calm down and get back in control 

The best bit of advice I ever had when I was diagnosed was: "Don't think further than your next appointment, concentrate on today!"

That helped to stop my mind racing ahead, thinking about what could happen.

Think you’re right because that’s exactly what I’m doing had panic attacks bad blood pressure was through the roof they stopped entalluzimide after 4weeks thinking that maybe causing blood pressure to rise but still on prostrate 3 injections last PsA was down from 40 to3.5 just on injections in first 8weeks before they started mme on entaliuzamide will take your advice thanks 

• How do I read the replies please 

It’s the notifications I don’t know how to read them 

Hello Bric 

At the top of the page (top right) there is a "lightening bolt". If there is a red number there, you have had a reply to a post or a notification. Click on the red number and it will tell you what it is.

When the "dropdown" appears telling you what it is, click on it to go there.

if you are on the Prostate Cancer home page - if it's in BOLD you haven't read them.

Best wishes - Brian.

I am on HT now, and am having RT at the moment.

My side effects, so far, are about half of Millibob  - hot and warm flushes, ranging from sticky to sweaty; some fatigue, but not crippling; some brain fog, but more loss of focus than memory loss.

Whilst explaining the hot flushes to my Chiropractor (I have had back problems for about 12 years) I was slightly taken aback when he said to me "I'd take that!". I explained to him that he was bonkers, but he told me that at least I knew it was working.

Shortly after, my PSA came out at 0.57, a fall 0f 98% in 4 months.

After that, I almost look forward to a hot flush, thinking of the cancer cells starving.

All in all, I have found ways to deal with it, having discovered that the fatigue and brain fog seem to be linked. Stuff that needs real concentration gets done in the morning or early afternoon. If I need to do anything or go anywhere in the evening, I pace myself to ensure that it gets done.

No real difficulties - just a little more planning and some changes in order.

Generally, it is ok.