New, low psa but lots of bone pain and worried

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im 54, white. Ive had yearly psa blood test since 50 and its always been 0.5ng. Also had 2 DRE conducted by my GP, last one was 3 months ago. Normal. I dont have any problems with urination or ejeculation but i have being recently diagnosed with liow testosterone which explains my low libido and ED.

however, 4 months ago i developed bone pain in my pelvis, hips and especially coccyx area. Its still here today and no resolpite. I have problems sitting and sleeping as i get a dull ache when i try to get comfortable.

i saw my GP who did the psa and DRE and he didnt seem worried. Did some other blood rests bone profile calcium fbc etc and told me ive probably hurt my coccyx exercising, even though i know i havent. This dull ache just wont let up.

Obviously as i have a stable low psa for 54 i believed what i was told. However, with chris hoy coming out with a diagnosis and his first symptom was bone pain it got me reading. I then read that you can still have prostate cancer with a low psa and bone pain can be a first symptom, and if its bone mets its terminal. Ive read agressive prostate cancer can have a very low psa. So now im worried sick.

anyone here have a low psa and first symptom was bone mets? If this was an agressive prostate cancer would i have noticed anything else with urination, ejaculating or pooping etc.

Im unsure what to do next. My GP seems reluctant to anything as i have low psa and DRE was smooth. Do i demand to see a urolost? Pay private for mri?

thanks for reading

Alpine Wanderer 11 days ago in reply to Yorkshireboy

Good morning Yorkshire boy / although I can’t offer any additional advice on your particular case, you do have my sympathy. You wrote your latest post at 1am. You deserve a long hug. AW

BW 11 days ago in reply to Yorkshireboy

Hi Yorkshire boy

Your bloods look great, everything is in the right place. If you had advanced aggressive cancer it would show up for sure. Mr BW only had his bloods in the right place once in two years and if you looked at his bloods you would be rolling on the floor, honestly it would be that obvious. Have you considered anything else like : fibromyalgia or arthritis . That manifests in a roaming pain. I fear you are caught in a zone of no sleep and high end worry. Hopefully your next meeting will make things clearer to you and things can be resolved. I hope it goes well and we are always here if you need us.
L

Yorkshireboy 10 days ago in reply to BW

Hi BW

did mr BW have bone mets?

if so did he have much pain?

thanks

BW 10 days ago in reply to Yorkshireboy

Hi Yorkshire boy Nothing showed up on his bone scans, but his PSA was high so that indicates micro mets were there. He also started HT very early. He had constant pain in his pelvis and the tops of his legs, no where else. It didn’t move, he says it was debilitating at times. It has stopped since treatment. His MRI showed a huge mass covering most of the prostate and outside, you could clearly see it.
This is why your roaming pain seems different. BW was told he had Prostate cancer for over 10 years already at diagnosis so a long time. It’s a slow growing cancer it took along time to get to a point of pain. You have no signs of cancer, but pain, so I’m wondering if it’s something else?
L

Brennie 10 days ago in reply to BW

Hi Paul, bone cancer is a deep pain in certain bones and never all over. So if you have pain everywhere it's not bone cancer

Yorkshireboy 9 days ago in reply to Brennie

Hi brennie

i dont have pain in every bone, the bone pains are just in certain bones but quite scattered around my core. None have come and gone, they are just becoming more of them.

no pains at all in my legs, lower arms or above my thoracic spine. No pains in skull or neck.

i have deep pains in my pelvis sacrum coccyx and lumber that are more painful when i sit diwn or lay flat. Putting weight on them basically. For pains in my pelvis area, its definutely worse when bearing weight.

the new pains coming from my thoracic spine and rib area proving to be my most painful as it hurts to breathe. Im hoping its not my lungs but i do get pains in my back when i breathe deeply.

If i move onto my side i get some relief. But after a while my hips begin to ache so im constantly shifting ti find the comfortable position. I just dont get quality sleep anymore.

i can literally pinpoint a 5p sized oain point in the bones im getting oains in.

fir example, i have a pain in my left upper humerus. It is very painful to lay on, makes me wince. But if i lay slightly off my side and take the weight off that 5p sized point of bone oain it doesnt cause pain. I can also use my hand to bridge the oain point so i know where exactly each pain is coming from.

the crazy thing is i still have no real prostate symptoms except for ED which i still think is testosterone related as ive had that for many many years. If it wasnt for the lump found in my prostate we would still be looking for some other cause. i guess my lump is no where near my urethra. .

BW 9 days ago in reply to Yorkshireboy

Hi Yorkshire boy It’s seems very unlikely to be PC, because It feeds on testosterone and you are very low on that. Certainly not enough to feed a raging aggressive cancer spreading all over your body? You’re pretty much self medicating with Hormone treatment. Let us know how you get on with your appointment it’s a very intriguing situation and I hope it works out well for you.
L

BW 9 days ago in reply to Yorkshireboy

Hi Yorkshire boy

Ive researched a bit as I’m just laying in bed doing sod all and drinking coffee.
side effects with low testosterone:

Low testosterone can contribute to bone pain, primarily through decreased bone density.

Testosterone is essential for maintaining bone mass and strength. When testosterone levels are low, this can lead to weaker bones, making them more susceptible to stress and injury, which can cause pain

Osteoblast Activity:

Testosterone supports the activity of osteoblasts, which are cells responsible for building new bone. When testosterone is low, the reduced osteoblast activity means that the body isn't effectively replacing old bone with new bone, leading to weakened bones.
Increased Fracture Risk:

Low testosterone can increase the risk of osteoporosis, a condition characterized by weakened bones and increased fracture risk. Fractures, even minor ones, can be a significant source of pain.
Muscle Strength and Performance:

Testosterone also plays a role in maintaining muscle strength and physical performance. Low testosterone can lead to muscle weakness, increasing the risk of falls and injuries that can cause bone pain.
Joint Pain:

In addition to bone pain, low testosterone can also contribute to joint pain. This can be due to inflammation, muscle weakness, or other factors.

Suggested treatment :

Testosterone Replacement Therapy (TRT):

TRT aims to restore testosterone levels to within the normal range, which can help improve symptoms like low energy, reduced muscle mass, bone loss, and decreased sex drive.

Pretty much what a lot of men on HT can have as a side effect, so this is delt with in other ways: ie Calcium and vitamin D or injections of zoldronic acid

L

BW 9 days ago in reply to eddiel

Hi eddiel

Looking back I think you guessed this 4 months ago.

BW 9 days ago in reply to Yorkshireboy

Yorkshire boy I’ve just read this whole thread back and it seems you were prescribed testosterone for this. What is your reasoning for not going down that route? I think this is more important really. Trying it out for a bit could be the answer, if you really felt it was wrong for you it’s easy enough to stop.
What about giving it a go ?
L

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