PSA levels

Hi Anthony5 I am not medically trained but my immediate thought is that there is a strong likelihood but not a guarantee of cancer.  You didn’t give a PSA figure which might give us a better idea.  I fully understand your shock from the phone call and I remember wanting to get answers when I was in the same position.  Just remember that if it is cancer, prostate cancer is very slow growing and a few weeks won’t matter, but I hope the NHS team work within the guidelines.  I am sure others will be along tomorrow to give you a better answer, but if you can let us know the PSA (and any previous PSA) level that would be very helpful.  David

David, thank you so much for replying. My GP just said the level was extremely high and didn’t give a number, and I didn’t know to ask. Thank you again for your reassurance David.

No problem Anthony5 , do you have access to the NHS app, if so depending on what part of the country you are in you may be able to see the blood test results (just a thought).  If not, try and get access as it can be useful.

We have guys on here with PSA extending into the thousands, so whatever is thrown at you, we can help.  David

Hi Anthony5 - once you add every reading you’ve been given we can certainly help and hopefully reassure you.  Just call your GP surgery / if you don’t have the app, they should be able to give you them over the phone once you’ve gone through security check so they know it’s you.   AW

Hi Anthony 

I would just give the GP a. ring and ask what the reading is, they should be able to give it to you straight away.

Also do you have any previous readings or is this your very first PSA?

Regards 

Steve 

Good Morning Anthony (Anthony5) 

Another warm welcome to the Macmillan Online Prostate Cancer Community from me. I am so sorry to find you here but we are a decent bunch and will help you through this.

First off, we do need some more information as my fellow Community members have mentioned above, however as your GP has sent an urgent referral to your hospital for you, you are starting on the "cancer pathway".

The NHS guidelines are as an urgent referral you should be seen by a specialist within 14 days of the referral (details in the link below)

https://www.macmillan.org.uk/cancer-information-and-support/get-help/raising-your-voice-toolkit/understanding-patient-rights

In todays world, you do need to advocate for yourself and with no date having been given, I would advise you to contact your hospital PALS Service (patient advisory and liaison service - you can find their details on your hospital web page). If you tell them the details, the guidelines are not being met and the delay is causing anxiety they should be able to do something about it. If they don't please get back to me.

We have all been where you are now and the delays in diagnosis and waiting to start treatment are the hardest part of the journey.

Best wishes - Brian.

Thanks Steve.

Thanks Steve. I rang the GP and left a message but nothing back yet. Yes this was my first PSA test and he just said it was extremely high.

Hi

If the referrral has been sent as possible cancer then the hospital should have and appointment for you in the next two weeks that is the guideline for these referrals.  I would not be happy with their response and would contact PALE who may be able to help you expedite your he appt. 
Good Luck 

A 

Meant to say PALS not PALE