Newly diagnosed

Hi Tom9748 welcome to the forum. I just wanted to say that that feeling of head spinning and thoughts filled with what ifs are perfectly normal in the circumstances. You have had a huge shock and I imagine you will have lots of questions. I don't enough about your specific type of Cancer but my fellow Champ Millibob will be along soon im sure to offer a warm welcome to this corner of the community. 

Many thanks Granny59

Hi Tom

welcome to somewhere where we all have something in common but rather not be here, but you’ll find us all a helpful supportive bunch of guys & girls, no question is too small or too unimportant so any time you think of something, just drop by and leave it on here, you’ll be surprised by how many replies you’ll get & how quick you get them.

My first piece of advice is, if you can, go do what you normally do, go to work, have the meal at the restaurant, if your not ill from this, go play the sport that you play if that’s your thing, don’t let it rule you or dictate to you.

Secondly, keep away from Dr Google, going down that rabbit hole lies madness, I would say, when you see your consultant and he gives you your options, look on the macmillan website and on the prostate uk website and read everything that’s relevant to you, if you have questions get on here at any time and voice them, I guarantee that there will be someone who will have taken the route of the options you’ll be given and be able to answer.

Thirdly, anytime you go to the GP or hospital about this condition, if you can, take someone with you, having a second pair of ears means that when you leave, you have someone as knowledgeable as you are to talk to about this, that’s not really an option doing it by yourself.

Lastly, this isn’t a death sentence, this may be a hiccup in life as I see mine, others on here have lived many years with theirs and are continuing to live normal active lives albeit with medicines, best thing I found for me was to plan good stuff to look forward to doing.

Anyway, hope this helps in some small way, but you’re not on you’re own on here, even though we’re all largely anonymous 

Best wishes, good luck and feel free to let us know how you’re getting along, feeling or with any questions

John

Hi Tom9748,

I reiterate what these wonderful people have already said on your post . My husband was diagnosed in March and he is on hormone treatment & starts radiotherapy on Tuesday . Please ask any question you need answers to whether you think they are trivial as it can grow arms and legs . I honestly dont know what we would have done without this bunch over the past months .

please keep us updated to your PSA and scan results as no doubt someone will answer you with information for you to read . 
Best wishes 

Liz & OH xx

Many thanks John.

I did make the mistake of going onto Google! Im 55, an ex-soldier and still very much into my fitness, so I train six out of seven days a week.
I think because of this I decided to buy the audiobook by Sir Chris Hoy and his journey since being told about his cancer. In hindsight probably not a good thing to do as every ache I have, hips, back etc all from training suddenly popped into my mind that maybe this has gone to my bones and even more what ifs. 
I think I need to give my head a shake!!!

Hello Tom (Tom9748) 

Well, here's another warm welcome to the Macmillan online Prostate Community - although I am so sorry to find you here.

 JohnyBoy and johnam have both stolen my thunder with their replies so all I can say is we are here for you - we are a decent bunch and we know just where you are now.

You are starting a journey that we can support you with as we have all been there - so feel free to ask any questions - however trivial -we will have answers for you.

Once you get a full diagnosis - there will be a biopsy for this - let us know the staging, Gleason Score and PSA  and we will be there with the answers to any questions you have. 

Best wishes - Brian.

Thank you for your reply

Thank you Brian.

Hello Tom and welcome from another wife here. We can all relate to the disbelief and fear when first diagnosed and then realise how little we know about it. The first thing to say is that prostate cancer is normally slow growing and over recent years there have been huge advances in how it is treated, very often with curative intent. Learning the terminology will help you to have a more informed discussion with the experts. There is a good book you can download for free which is a good starting point.

https://issuu.com/magazineproduction/docs/js_prostate_cancer_guide_for_patients_ezine

Please come back with any questions and someone will come along with their experience but feel free to join in with any of the conversations.

Hi Tom

Yes I know , it is a difficult time when first diagnosed.

PC's are fairly easy to treat these days unless it has spread elsewhere in the body but even then treatments can hold it at bay for many years.

Obviously you don't know what's happening because u are waiting for the all important scans which will tell most of what you need to know.

Let us know when you have some more info, there are plenty of folks on here who can give u good advice 

Best wishes 

Steve