Morning all,
I'm 48 and live in deepest, darkest Kent.
I've had problems with my urinary system for the past 4 years. Starting with urinary retention, resulting in about 9 months of catheterisation. I then noticed that I was struggling with Post Obstructive Diuresis, which left me passing upwards of 10 litres per day.
At the time I was on Lithium to treat my Bipolar disorder which made my psychiatrist and myself wonder whether this was something called Nephrogenic Diabetes Insipidus and stopped the Lithium. About 3 years ago I found out that I had also started suffering from Diverticular disease affecting 80% of my large intestine. (YAY!!!)
Stopping the Lithium ended up not changing anything, so was sent for a Cystoscopy which discovered an enlarged prostate. About 6 months later, after a 2nd Cystoscopy, I was booked in for a TURP. This was carried out but within 6 months my prostate had enlarged to a bigger point than pre-TURP dimensions.
Urology seemed to give up on me , as did the GP. It wasn't until about 3 months ago that I started struggling with an increasingly painful lower back and pelvis. I have finally persuaded the GP to run a PSA test on me, which was like pulling teeth, although when I called the surgery for an urgent appointment I was told that PSA isn't worthy of an urgent blood test and offered me an appointment 4 weeks later (Hospital offered me one next Monday)
Urinary symptoms are the same as previously.notes.
Sorry for the long post
Phil xxx
Hello Phil (Sagittarius48)
Another warm welcome to the Macmillan Online Prostate Community - again I am so sorry to find you here.
My welcome is from the dark satanic mills of Lancashire (although I am on holiday in Turkey at present) 
.
As David (David2017) said the wait for tests and results is the hardest part of this journey and you have already been "through the mill". Reading between the lines someone somewhere should have thought about a PSA test in the past - but it's your age - under 50, and a PSA test isn't an automatic process.
I wish you well with the results - stick with us and ask anything you want - we do have a great deal of knowledge between us. I look forward to hearing from you with the results.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Thanks Phil (Sagittarius48 )
I fully understand where you are with this.
Always here for you - as I said - "we have been there - done that".
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hello Phil (Sagittarius48)
When I had my TURP in November 2022 they tested the "chips" and kindly upgraded my diagnosis from a Gleason 7 to a Gleason 9. As you say it's possible they didn't but I understand they keep the "chips" for 6 years. You could check with the hospital if they have a histology report - I have mine.
Lower back and Pelvis pain can be caused by many things - A CT or MRI scan would be the answer after your PSA results.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
