Advanced Diagnosis

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Hi everyone,

Well this is my first post, having been reading all your blogs over the period since the start of my diagnosis journey.

I’m shortly 66, reasonably fit and active, was by chance during a GP visit he gave me a “routine DRE” , that was early April this year, he wasn’t happy with the way it felt, blood and urine tests resulted in a high PSA 10.1, MRI which was PIRADs 3, then followed a biopsy. Yesterday, I was told, Gleason 4+5 T3a N1 Mx and a PSMA scan in 14 days……..Needless to say we are devastated. I hadn’t expected this diagnosis given what the various medical professionals were saying at the various stages, I was prepared a PCa diagnosis, but not for it to be so advanced.


Things are a blur at the moment and all of a sudden it seems like overnight our life has become more complicated. We have to explain to the kid’s, family and friends, trying to put a brave face on things but inside is a different story.

 I don’t know what the next steps will be in terms of treatment options, the urologist said nothing will be decided until the scan results to see if has spread further, that seems like an eternity away, This is with the NHS who I imagine are going through this process as fast as possible, but the anxiety is cranking up now, big time. I did ask yesterday if going private would be quicker, unlikely, was the answer.

I learned more about this disease having scanned all your blogs of late, I feel I know some of you already, I definitely found it has helped me to try and make some sense to what we’re having to deal with.

So that’s me, even sharing this seems to have helped a little. I know, we have to be positive but…..

one love

  • Thank you AH,  really useful clip,  have my cardio MOT in a month where I will finally find out if I'm good to go regarding chemotherapy, and  my MDT a few weeks later when I expect my PSA to have doubled again for the 4th 3 monthly test and be over the 1.5 score when  plan B starts, hopefully the holiday or intermittent pathway may be an option. Addenbrooks today,, their a little vague and say  they need to see test results first, I'm thinking  guinea pig, hopefully I'm wrong.

    Eddie xx 

  • Go with an open mind and see what they have to say but let us know how you get on.

    I hope you and Sheila also have some time to enjoy visiting Cambridge.