Dealing with Pain

Hello Julie (julesnew59) 

I am so sorry to read of your husbands issues. May I suggest the following:

* You speak directly to both his personal GP and his CNS (Cancer Nurse Specialist) find our who is taking responsibility for his pain control and ask them to resolve the issue.

* You can put your specific question to a Macmillan Nurse and here's the link-

Ask a Nurse 

Please allow a couple of days for a reply although they a pretty much up to date last time I looked.

I hope you can resolve the situation.

Best wishes - Brian.

Hi julesnew59

Good afternoon and welcome it's great to meet you today.

I have also got bone matastases and I was diagnosed last June.

Since my Stroke/Brain Hemorrhage/Brain Surgeries I have been on a cocktail of meds for Nerve Pain: Pregabline + Amitriptyline + Morphine Patch Oxcarbazipine + Amandine.

Following my Cancer Diagnosis my GP also gave me Liquid Morphine but I have resisted using this to date as I always like to keep a back up plan.

Fingers crossed this cocktail of drugs worked well for my Nerve Pain previously and hopefully long will this continue & I have still got the Liquid Morphine to fall back on.

You really need to speak to your medical team and GP to see what is good for your husband.

Please please come back to me if there's anything else that I can help you with???

Prostate Worrier.

Thanks I have rang the doctor to see if they can give him something different for the nerve pain we have a review with oncologist end of month a telephone not face to face seems to be the way now. I will bring up the pain control and see if we have a CNS cos don't think we have every been appointed one. Trying to see a GP is virtually impossible these days but they have said someone will call us back so guess we have to wait and see if that happens.

Hello julesnew59 

You should have been allocated either a hospital or Macmillan CNS - I would have a word with the hospital care team - some details of our services are in this link-

https://www.macmillan.org.uk/cancer-information-and-support/get-help/macmillan-nurses

Everyone on the Cancer pathway should have an allocated CNS they can contact.

Best wishes - Brian.

Hi julesnew59 

Many thanks, yes that will be great to speak to the oncologist at the end of the month.

Yes mention the pain control and the CNS to see if you already have one of these as you should.

Yes trying to get an appointment with your GP can be difficult but please let me know how things go????

Prostate Worrier.

Hi Julnew59, I don't know if you have considered the palliative care team, I have advanced prostate cancer with mets and peripheral neuropathy and a few co-morbidities and have been referred to my hospice and their palliative care. Julie this is NOT end of life care, the team is there to make you as comfortable and pain free as possible so you can make the most of your time and as you are able to contact them quickly, they can often keep one step ahead of any pain as well as offering all the support  services, activities and therapies your hospice provides. best wishes.

Eddie xx

Thanks I do have a number that we had to use during chemo and you speak to nurses so maybe thats still the case after the chemo I will ring them and ask the questions thankyou

Thanks Eddie my husband still goes to work (his choice) they have gave him a different role he is exhausted when he comes home but he still wants to work. I did not know you could use the palliative teams until it later on but I will check this out. Thankyou

Thankyou for response I have spoken to doctor and they have changed to Gabapentin (low dose) and paracetamol along with the naproxen and Tramadol (low dose) so we are given that a go next I guess its just trial and error until you get the mix right will see how he goes and then discuss at end of month at oncologist telcon. Thanks

Morning Julie, though i have been registered to the care team for many months have only had to see them twice, I find it so comforting knowing they are there should i need them.

Eddie xx