Advice and Counsel - How Much to Too Much?

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Forgive me if I ask "dumb questions" - but I have been forced to enter the Prostate Cancer Arena against my will or choice, so every day is a "school day" to me, as I am trying to explore my best options for treatment.

I have heard it is essential for patients to discuss their options with a multidisciplinary team, including urologists, radiation oncologists, medical oncologists, and other healthcare providers, to develop a personalized treatment plan that best suits their individual needs and circumstances.

* I am due an appointment 30 April with a Consultant to explore the "best" form of treatment for my condition. But those of you who have had treatments - how many second, third or fourth opinions did you seek before initiating your treatment?

* How did you make your final choice?

* If you have undergone your treatment - Is there anything you would do differently if you could "go back in time" and make a decision?

Thank you for your time. I have no-one to talk to right now, so your help would be gratefully appreciated.

  • Hi,  please don't feel forced to be in this forum.

    In May 2021 I was diagnosed with T2, Gleason 3+4(7), Intermediate Risk.  I wasn't suitable for surgery so I opted for the Hormones and Radiotherapy treatments.

    Now I am 2 years into Remission (touch-wood).  I don't regret choosing the Hormones and Radiotherapy.  Yes I had some side effects, still have a bit fatigue and ED, over 2 years later.

    But... being in Remission totally makes up for that.

    See what your specialist recommends.

    If you can, take someone with you, either your daughter or wife/partner.

    We are all here for you.  I know it might sound corny.

    Please let us know what your decision is.

    Steve (SteveCam)

  • Hi SCH

    In answer to your question

    I was considering surgery at first but changed my mind when I realised that major op with a GA, didn't fancy that.. Also  potential irritating side effects like ED and urinary issues although should  say that not everyone has them.

    So went for RT which I found quite easy , just lay on a bench and had a machine whizzing round me.   All over after about 6 weeks which included short term side effects.

    That was in 2017 and everything ok since then.

    any other questions please ask

    best wishes'

    Steve

  • Hi Alpine Wanderer,

     I had my follow up treatment telephone review with the hospital at the end of November so I'm expecting to get a reminder about having a 6 monthly PSA blood test via the GP within the next few weeks.  I have it diarised so if I don't hear anything will request one direct with the surgery.

    The side effects from HT have been wearing off & only get a very occasional hot flush which only lasts a couple of minutes & is quite minor by comparison so hardly noticeable these days.  I'm also glad to say that my libido seems to be coming back again so will ask them to check my testosterone level at the same time.

    All the best

    Brian

    .

  • My libido is coming back but there's nothing to back it up (if you know what I mean).

    Steve (SteveCam)

  • What "short term side effects" did you encounter please?

  • Main one was constipation which started midway through and finished a couple of weeks after treatment finished.

    Meds helped in a limited way but I could cope with it

  • Fatigue was a big one.  Loss of libido.

    The Hormones gave me hot sweats, manboobs, turned me into a right woman.

    Don't regret it for a minute!

    Steve (SteveCam)