I am New to the MacMillan website and I am not sure if I am in the right place.
I was recently diagnosed with Prostate Cancer. The woman who told me that the biopsy had confirmed this - had a broad smile on her face as she broke the news to me. She said she would be my Urology Specialist Nurse, and handed me a business card. I was a little bemused as to why someone would have a broad smile on their face when delivering life-changing news - but I assumed she was trying to be "friendly" - as it was the first time we had ever met.
Since that last week in January till now (12 April 2024), I have tried to phone this nurse FIVE TIMES to pass on information I have received from a consultant appointment I subsequently had, and wanted to know what would happen next. Not a word has been forthcoming, despite leaving FIVE answerphone messages. This is a little disconcerting to me.
I am in a position where I doubt the sincerity of this indiviual, and feel she couldn't care less about me - and that initial "smile" I witnessed was that of a psychopath deriving some form of pleasure like a Schadenfreude.
Am I right to be concerned - or is this the fear and trepidation of someone embarking on this journey into the unknown, trying to navigate something shocking and new? I am seeking help and guidance - but nothing seems to be forthcoming from this "Urology Specialist Nurse".
I welcome your thoughts. I feel very isolated and alone, and like the medical world couldn't give a damn!
Thank you Tony. Very Much appreciated.
Hi Seeking Clear Horizons
Many thanks my friend, yes I will forward you the info on the PALS Service.
I'm currently being treated at the Cancer Hospital at the Queen Elizabeth Hospital.
Please please leave it with me and I will get back to you asap but if there's anything that I can help you with further please let me know!!!
Prostate Worrier.
Hi Seeking Clear Horizons
I have just just found the info for you below.
01214240808
Yes I have been a patient at the QE Hospital since 1998 so I am happy to assist you in away that I can???
Prostate Worrier.
Hello Seeking Clear Horizons
To add to the previous post further details are attached in the following link
https://www.uhb.nhs.uk/get-in-touch/feedback/report-a-problem.htm
As an organisation we also have the "Raising Your Voice Toolkit" and a link to this is here-
https://www.macmillan.org.uk/cancer-information-and-support/get-help/raising-your-voice-toolkit
If you need any help with the above please let me know.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi Seeking Clear Horizons
No probs my friend it's my pleasure!!!
Prostate Worrier.
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